I am so sorry to hear that things keep going from difficult to more difficult.
This may be to the stage of taking day by day to build good memories, to plan together how you want things to be from now on. To plan what he wants. Sad.
That is what we did when Mike was given just 90 days. He had a reprieve because TP was still an alterntive for him.
He has a brother who is not as lucky.
His MELD score is too low to get to the top of a list for a cadaver donor, his liver has been cured of Hep C so that's good, but his recurring liver cancer is the issue. He has had 2 successful radio frequency ablations that zapped small tumors. But this time the cancer has spread to his spine. He has lost all mobility below his belly button and has no control of bowels or bladder. He cannot stand at all or transfer from bed to chair or wheelchair by himself. So from a vital guy with liver disease he is now in hospice with an aggressive spine cancer and no hope of transplant. They are giving him pain meds as needed and they tell us he death is not imminent, but there is no cure or actual treatment for his particular diagnosis.
We are very worried, and Mike will head up to see his brother in the next days, try to spend some quality time, and maybe help him through the quagmire that is closing his apartment, utilities, etc, getting paperwork in order for medical and financial power of attorneys, final plans...kinda grim...but his brother has to do that stuff. I think the social worker is really good and his care seems to be excellent. The worst part is this guy is pretty young...younger than we are.
I will be thinking of your family in the next weeks and hope at he isn't in too much discomfort. Maybe the TIPS will do the trick. One of our member had a TIPS years ago and has done just fine...so long as he followed his good diet.
MamaLama, Forum moderator - Hepatitis
Partner received liver transplant (May 1, 2011) FL
Hep C 1a Treatment - Sovaldi/Olysio (March - May 2014)
Undetected since week 4. Undetected 12 weeks post treatment.