Dying from Liver Disease is Sad

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MamaLama
Forum Moderator


Date Joined Oct 2010
Total Posts : 4800
   Posted 10/22/2017 1:32 PM (GMT -7)   
Mike has been with his brother this month, coming home some weekends to help us move. He and his brother both had Hep C and cirrhosis from the usual causes..drugging as a kid, and too much booze since then.

Mike cleaned himself up, qualified for transplant, did well after, and cleared his Hep C along the way.

His bother did not qualify for transplant and continued to drink even after his Hep C was cured. He pretended he was sober, but not really...maybe he drank less often, or less each day...not sure what he was thinking.

But he is not going to get out of it this time. He had hepatocellular carcinoma several times. And was treated with radio frequency ablation, I think that is what it was. It did not disqualify him for transplant, so I know it was small His MELD score didn't get high enough for a VA transplant...those are really high qualification levels...like 30 I think.

Oh, and did I mention he was not really sober. He continued to smoke also, maybe they didn't like that either.

Though they scanned him often, his hepatocellular carcinoma metastasized to his spine and for the last months he has been using a wheel chair and has no feeling or strength below the navel. He was sent home to rest...

For the past month he has been in the hospital and 3 weeks ago moved to hospice. He has failed quickly. He is only 73 pounds now. In the last 2 days he has stopped communicating. Last rights today. Mike is there and very sad. The end is near. Hospice assures Mike that his brother is in no pain.

I pray for each of us to have a more gentle transition from this life. Liver disease/liver cancer can be a mean beast.

Mama Lama
MamaLama, Forum moderator - Hepatitis
Partner received liver transplant (May 1, 2011) FL
Hep C 1a Treatment - Sovaldi/Olysio (March - May 2014)
Undetected since week 4. Undetected 12 weeks post treatment.

ppm guy
Veteran Member


Date Joined Apr 2010
Total Posts : 1097
   Posted 10/22/2017 2:52 PM (GMT -7)   
So sorry to hear. Prayers for your family.

MamaLama
Forum Moderator


Date Joined Oct 2010
Total Posts : 4800
   Posted 10/22/2017 3:20 PM (GMT -7)   
Thx...C
MamaLama, Forum moderator - Hepatitis
Partner received liver transplant (May 1, 2011) FL
Hep C 1a Treatment - Sovaldi/Olysio (March - May 2014)
Undetected since week 4. Undetected 12 weeks post treatment.

MamaLama
Forum Moderator


Date Joined Oct 2010
Total Posts : 4800
   Posted 10/23/2017 5:17 PM (GMT -7)   
AT 9:30 last night, Mike's brother passed....at peace with his God and his brothers and sisters at last.

The VA has looked after him wonderfully and Mike was with him for most of the past month.

It will take a while to let this process.

ML
MamaLama, Forum moderator - Hepatitis
Partner received liver transplant (May 1, 2011) FL
Hep C 1a Treatment - Sovaldi/Olysio (March - May 2014)
Undetected since week 4. Undetected 12 weeks post treatment.

ppm guy
Veteran Member


Date Joined Apr 2010
Total Posts : 1097
   Posted 10/23/2017 7:14 PM (GMT -7)   
My condolences to Mike and you. Praying for your family
Take all the time you want.

Cirrhosis_2017
Regular Member


Date Joined Aug 2017
Total Posts : 39
   Posted 10/25/2017 10:50 AM (GMT -7)   
I am so sorry for your loss.

MamaLama
Forum Moderator


Date Joined Oct 2010
Total Posts : 4800
   Posted 10/25/2017 12:49 PM (GMT -7)   
Thank you. Since this brother was younger it was a shock...especially since they shared a diagnosis...and Mike is still with us...makes you really think....ml
MamaLama, Forum moderator - Hepatitis
Partner received liver transplant (May 1, 2011) FL
Hep C 1a Treatment - Sovaldi/Olysio (March - May 2014)
Undetected since week 4. Undetected 12 weeks post treatment.

Post Edited (MamaLama) : 11/1/2017 7:52:00 PM (GMT-6)


healthynow
Veteran Member


Date Joined Oct 2010
Total Posts : 1773
   Posted 10/29/2017 5:02 AM (GMT -7)   
Condolences, thoughts and prayers for you and Mike. I am so sorry to hear this.

Big hugs,
Emma
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