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New Member

Date Joined Oct 2017
Total Posts : 12
   Posted 1/15/2018 4:40 PM (GMT -6)   
To make a long story short, I have been tossed around for a year from doctor to doctor to find out what is going on....
Definitely classic symptoms of autoimmune but not really sure what. Test negative for RA and Lupus. Positive Actin IGG high , ANA 1:320, high CRP, blood in stool..... all other test normal. No, I do not have hepatitis I was cleared by hepatologist.
I'm waiting for an EGD and Colonoscopy on the 31st
One of the most frustrating parts of all this is the increase in pain! It all started with lower back back pain, favoring the right side, over a year ago. Now my joints are an issue. My back is still in pain along with right hip. My hands are the second painful part. Also my wrist, elbows, shoulders. My ankles and toes sometimes.
Any ideas on what is going on??!!
Anti inflammatories flare up my bowels. I have Celebrex but it also can cause stomach abdominal pain sometimes..

ppm guy
Veteran Member

Date Joined Apr 2010
Total Posts : 1169
   Posted 1/15/2018 8:59 PM (GMT -6)   
hi Andlo,
Hopefully your colonoscopy and EGD will give you the answers to your suffering. Aih is not likely at this point. I see you have posted in IBS. Maybe our Crohns and UC people can help. best of luck

New Member

Date Joined Oct 2017
Total Posts : 12
   Posted 1/15/2018 10:21 PM (GMT -6)   
Thank you ppm guy. I went ahead and posted on the Crohns forum too.

Regular Member

Date Joined Apr 2015
Total Posts : 67
   Posted 1/21/2018 6:02 AM (GMT -6)   
Have you been tested for Lyme's?

New Member

Date Joined Oct 2017
Total Posts : 12
   Posted 1/21/2018 8:44 PM (GMT -6)   
Yes I have been tested for Lyme. I'm surprised my labs don't scream Lupus!!! Now this evening I noticed some swelling on the right side of my neck.....
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