My message for caregivers

Hi every one. As most of you know I have cirhosis & hepatic encephalopathy.My husband is my main caregiver. I know it is not easy for any of you in the role of being caregiver for your loved one. I want you to know that often times it may seem that we the patients don't often show how much we appreciate you, but we do. You , our family & friends is where our strength & hope lies.It is because of you that we have the courage & strength to live & get thru this. Our time with you is so precious to us.It is alot to do to take care of a loved one. Please let us help in decision making& let us have our dignity & self respect tho, however much we have left.We see the pain & confusion in your eyes & we know you get tired & worn down, Please know we love you & you are so dear to us. I pray for each & everyone of you's that God will give you strength to endure & that you will know how much you are loved. God bless each & everyone of you.Don't ever give up dear ones for you are so special. later....

Hi Patty, how are things going for you? haven't heard from you for awhile. Hope everything is alright.My thoughts & prayers are with you. How is your dad?later....

Hi Jennifer, thankyou. Excellant advice & probably the most important.thankyou for thinking of it as we patients often forget to ask many things as well.Also when the encephalopathy is flared up or we are to sick to care we also forget some instructions given to us even temporarily.Also it is you our caregivers whom recognize symptoms we don't.Hugs. My thoughts & prayers are with you. later....

Hi Shel,You ARE appreciated hon. Please don't ever doubt that. Sometimes with our loss of independance & loss of self esteem this disease takes from us it is hard for us to put things into words. For the first few years I felt saying thankyou or showing & expressing gratitude & appreciation meant admitting defeat. It took years to see things differantly.I still feel like a burden sometimes but I do the best I can to do what I can when I can. It's not easy for you sweetie, we all know this & we are here for you. Love & Hugs. My thoughts & prayers are with you & your family. later.....