New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Marburg
Regular Member


Date Joined Mar 2006
Total Posts : 495
   Posted 5/12/2018 4:16 PM (GMT -6)   
This sucks. My insurance company refused to pay for Xifaxan. I can't afford to pay out of pocket.

ppm guy
Veteran Member


Date Joined Apr 2010
Total Posts : 1226
   Posted 5/12/2018 5:42 PM (GMT -6)   
Hi Marburg and welcome back,
Sorry about that. But it is a somewhat common problem. Many members here have had to have their drs appeal the refusals. My brother got refused twice, but his hepatologist made it clear that xifaxan was not optional.

How have you been? I saw your last post, about 4 years ago. Let us know how things work out...

Marburg
Regular Member


Date Joined Mar 2006
Total Posts : 495
   Posted 5/13/2018 8:49 PM (GMT -6)   
Thanks for the welcome back. I had been doing fine until a recent fall landed me in the hospital. The fall was serious enough to result in almost all enzymes being extremely elevated. While there I was put on Xifaxan.

Currently my labs look pretty good. Just going to have to fight the insurance company.

ppm guy
Veteran Member


Date Joined Apr 2010
Total Posts : 1226
   Posted 5/14/2018 2:44 PM (GMT -6)   
Glad to hear your labs have been stable. Is this fall from HE, or just a random issue?

Marburg
Regular Member


Date Joined Mar 2006
Total Posts : 495
   Posted 5/15/2018 2:44 PM (GMT -6)   
A random issue, but the fall did make a bunch of stuff to put of whack that initiated my first episode of HE resulting in Xifaxan and lactuose being precribed. Saw the help doc yesterday and he took me off xifaxan. Unfortunately, my meld score has gone up to 14. He says lose a few pounds and it may stabilize and go down.

Alcie
Veteran Member


Date Joined Oct 2009
Total Posts : 5029
   Posted 5/16/2018 10:07 PM (GMT -6)   
I don't know of ANY insurance that covers Xifaxan, but there is ONE FREE card that WILL reduce the cost!

Singlecare.com has a Wal-Mart ONLY card that will give you a huge reduction! It seems to NUMBER OF PILLS!!!!

My brother got his for $259 in Columbus OH (about $6 per pill), and I got it for my hubby for $389 (about $9 per pill) in the Pittsburgh area.

Don't get the card that is for any place (SC1). It has to say WM1 (for Wal-Mart) on the PCN line - the last line on the card, or you've signed up for the wrong card. They have similar reductions for other stores, but Wal-Mart was the cheapest we found.

Remember!!! The secret is to get only 42 pills!!!! The per/pill price for 60 pills is a LOT HIGHER! Cash price is over $2000 a month for 60 pills ($33/pill).

I have no idea why. At least it's legal and not out of the country.

Marburg
Regular Member


Date Joined Mar 2006
Total Posts : 495
   Posted 5/17/2018 9:13 PM (GMT -6)   
Thanks Alcie. My hep/gastro doctor took me off Xifaxan. He said I don't need it at this time. He also reduced my lactulouse to one tablespoon a day.

ppm guy
Veteran Member


Date Joined Apr 2010
Total Posts : 1226
   Posted 5/18/2018 6:36 PM (GMT -6)   
Starting a healthy diet could make a big difference.. it can lower your enzymes and help your A1C.
How has your diabetes numbers been?

Marburg
Regular Member


Date Joined Mar 2006
Total Posts : 495
   Posted 5/18/2018 7:09 PM (GMT -6)   
My A1c was 5.3. I started a healthy diet this week. Hopefully I can lose weight and bring my enzymes down.

MamaLama
Forum Moderator


Date Joined Oct 2010
Total Posts : 4838
   Posted 5/25/2018 4:29 PM (GMT -6)   
When/if you DO need Xifaxan, the advice you have been given is good...try a card plan and try to have your doc get a pre-authorization. I wrote a letter for Mike with a line in it like this: "My partner is dying of advanced liver disease. His life expectancy is 90 days without a transplant. Unless you are denying your fallen soldiers their morphine while dying of wounds in the field, please do not deny my partner some semblance of mental health as he passes. He won't need them long!" He got the pills approved. He also got a liver transplant in time, though he was one sick dude for a long time. When HE is really bad, the patient can be quite impaired...angry, out of control, confused, ,and likely to do some strange things. We had an ongoing fight about the driving. He would get so angry at other drivers I thought he would drive into other cars to "train them." I would not drive with him and we would take 2 cars for a while until he surrendered...and got on the Xifaxan. We have done some reflection on that time and realize that he has NO memory of the year before transplant...people came from all over to visit "one last time" from far away...Germany, Utah, Connecticut...we are in Florida, ...and he says they did not...hmmmm. Your Meld of 14 is serious but not dire at this time. Glad the HE has leveled off for now. Best to you. Mama Lama
MamaLama, Forum moderator - Hepatitis
Partner received liver transplant (May 1, 2011) FL
Hep C 1a Treatment - Sovaldi/Olysio (March - May 2014)
Undetected since week 4. Undetected 12 weeks post treatment.

Marburg
Regular Member


Date Joined Mar 2006
Total Posts : 495
   Posted 5/25/2018 5:58 PM (GMT -6)   
Thank you MamaLama

Marburg
Regular Member


Date Joined Mar 2006
Total Posts : 495
   Posted 6/19/2018 1:15 PM (GMT -6)   
Got some good news today from my liver doctor. So far there's been no further progression and my meld score is not high enough to be placed on a transplant list. He also have me clearance to use a pain med for nerve pain. He's going to monitor. If there's no progression in three months then he'll go to follow up in six months.

ppm guy
Veteran Member


Date Joined Apr 2010
Total Posts : 1226
   Posted 6/22/2018 5:26 PM (GMT -6)   
that is very good news. Your healthy diet, seems to be paying dividends..How has the lowered dose of lactulose worked out for you?

Marburg
Regular Member


Date Joined Mar 2006
Total Posts : 495
   Posted 6/22/2018 6:53 PM (GMT -6)   
Thank you.

Yes, the lowered dose of lactulose is working out perfectly for me.

Alcie
Veteran Member


Date Joined Oct 2009
Total Posts : 5029
   Posted 6/23/2018 9:02 PM (GMT -6)   
Xifaxan doesn't seem to help my hubbie, when I can get him to take it.

Be very careful of allowing a liver patient to use anything that is metabolized by the liver. Hubbie has gotten himself into the hospital a couple of times, once from taking tramadol, once for Valium for pain. He didn't remember he had taken a dose and took about 15 of the lowest dose Valium in 3 days, that his doctor had prescribed. Fortunately he only had a few and they're not highly toxic like some meds! Some of these meds can stay in the system a day in a liver patient for every hour in a normal patient. Look up ALL pills with keywords liver failure and duration of action. What I take that lasts 4 hours for me takes him 3 to 5 days to eliminate.

I take his keys and keep my pills in a lock box. I put his meds in his daily pill boxes and check his pockets.

Marburg
Regular Member


Date Joined Mar 2006
Total Posts : 495
   Posted 6/23/2018 9:30 PM (GMT -6)   
Good to know.
New Topic Post Reply Printable Version
Forum Information
Currently it is Tuesday, September 25, 2018 9:30 PM (GMT -6)
There are a total of 3,006,673 posts in 329,376 threads.
View Active Threads


Who's Online
This forum has 161843 registered members. Please welcome our newest member, Shield of pistis.
303 Guest(s), 8 Registered Member(s) are currently online.  Details
SoMuchFun, Mustapha, Tredye, Pratoman, Chutz, Cajun Jeff, (Seashell), Sahale