Being an advocate for your son is sooo helpful. Most with Hep C or cirrhosis from other causes are not quite in the right frame of mind to advocate for themselves.
My partner of 37 years has been through the mill with Hep C and Alcoholic Cirrhosis...he never knew for over 30 years and then lived with the diagnosis for years more. In 2003 he did a year of the Interferon and Ribaviran...which was hell on earth for Mike, and tough on the family too. But he was not cured.
By 2010 Mike was at death's door. No one who knew him then would believe he would be alive and playing golf today, 8 years later. He qualified for a liver transplant once they got him patched up with the Lactulose and Xifaxan (big fight with insurance company as Xifaxan is EXPENSIVE and not on their formulary). As his advocate I wrote and called and fussed and threatened. At one point I wrote a letter that said something like...you won't need to cover it for long as he will die any day now unless he gets to the top of a transplant list...then he will be cured. He got the meds. I said he was just dying...did they leave wounded soldiers in the field with no morphine while they just died of their injuries from IEDs????? That must have gotten them.
Before his transplant, they found cancer in the liver. That was good/bad news. No one wants live cancer, but in transplant land, you get extra MELD points and go up the list faster. But if the tumor gets larger than 5cm, you drop off the list...
His came through May 1st, 2011.
But...big but. He still had Hep C after transplant and OF COURSE, the Hep C started right in on the new liver. UGH. Would this ever end. The new drugs were just coming on the market.
It wasn't until 2014 that he was prescribed a cocktail different from your sons...for 1a. It worked, the sides were NOTHING to deal with, and he was undetected in very few weeks. And remains so today. The docs consider him CURED. He still takes meds for rejection and has to be aware that with a suppressed immune system his is vulnerable to various diseases...markedly skin cancers and lymphoma.
Since all that excitement he has had 2 hernia repairs in the Transplant incision (it goes from mid chest to navel and off to the side...they call it a Lexus incision... He has had an aortic valve replacement with another giant scar (neck to top of Lexus scar). And struggles with Stage 3 kidney disease. So, as a 69 year old retiree, with a bunch of stuff he has dealt with, he is doing pretty darn well. His nephrologist says she will put him on a kidney transplant list at Stage 4 and he can do dialysis while waiting...He will be 70 this next birthday, but they still say he would not age out of that program.
I hope your son is treated sooner than later and that every cell not cirrhotic can do some reproducing...as I do for Mike, hoping the 2011-2014 damage from lingering Hep C, doesn't do him in again. No drugs, no alcohol, but fattly liver can do the same thing...and he has not been watching his weight lately...ooops.
Let us hear from you,
MamaLama, Forum moderator - Hepatitis
Partner received liver transplant (May 1, 2011) FL
Hep C 1a Treatment - Sovaldi/Olysio (March - May 2014)
Undetected since week 4. Undetected 12 weeks post treatment.
Post Edited (MamaLama) : 1/16/2019 1:47:57 PM (GMT-7)