Hi everyone! In the past I have posted in the lupus forum, although not for quite a while. Right now I have the diagnosis of SLE with multiple system involvement to include lungs, refractory anemia with severe leukepenia, asthma, goiter, sjorgren's syndrome, raynauld's syndrom, damage from large previous DVT in left leg.
Two weeks ago my hemo/oncol. had me have a cat scan. After an appointment last week he said that he was concerned about my liver and spleen due to the results of the scan and lab tests. He is concerned about my liver and spleen. This thursday I am going for a liver/spleen scan. He told me that I have an enlareged liver and cirrosis. He strongly suggested that I see a rheumy, a teaching and research hospital with a great rheumy dept. Monday they had a cancellation, and I went. The docs are questioning my present diagnosis, and are running tons of lab work. I return for a visit in three weeks. They reccommended I stop taking minocycline (for my face break-outs) and increased my plaquenil to 400 mgs.
After doing research on my own, I have discovered that I have many symptoms of liver disease, especially hepatitis. I'm not trying to self-diagnos but I can't ignore what I've read.
I am very affraid at this point. I have read many of the postings here and I want to give each and every one of you a big hug. You are all so brave and patient. I hope that I will have similar grace.
I am a mom of two, Michael who is 8 and has autism. He is in school and doing well, he such an angel with a good sense of humor. He is good in art, computers and math. My older son is in college majoring in psychology. My husband who is a rock and great support is an elementary school music teacher. He is a great care-taker of Michael and me. I like to play my harp. It's very soothing and therapuetic.
I just wanted to introduce myself and I need a good support system. I am needing help in coping with this, I am truely affraid. I also have much to learn.
I hope that you will all have a good day. Hugs to all and thank you for listening.
Blessings and hugs, love, Cynthia
"I have found the paradox that if I love until it hurts, then there is no more pain, only love." Blessed Mother Theresa