Hi Leece and welcome to HW. I have been going through this nightmarre with my husband since December. I can sometimes tell when the encephalopathy is starting to kick in, sometimes it comes without warning. He has gone into coma's and near coma's. I have to work on weekends and I never know what I will be returning home too! When he does this it is because the ammonia levels are elevated big time. There are many things that can cause it to rise...infection, electrolyte imbalance, eating too much protein and other things as well. My husband, I noticed right before getting bad was very forgetful and had fluid build up. He is diabetic, but I have been told his liver caused it. Cirrhosis does not happen over night it usually take years to develop to end-stage liver disease. There are so many drugs that are prescribed and over the counter, that can cause liver damage. But elevated enzymes should be checked out by the doctor. My husbands AST & ALT have been slightly elevated, which really does not show the whole picture, it could been dismissed easily if it had not been for other symptoms, ascites being the big one.
I am so sorry you have lost your Love! My heart goes out to you!! I will be praying for you!
Hi, Leece, My husband is listed for a transplant, his prognosis does have hope if he can get a transplant. He has severe ascites and as it is standing now he gets a paracentesis about every 2 weeks, the TIPS procedure is out of the question for him, because it can make encephalopathy worse and I don't want to have to deal with that any more than what I do already. Mark went into a coma without advance notice on Easter weekend. I was scared to death!! Since then his encephalopathy varies, he can be quite lucid, be off a little, or way out there. I can stop the progression if I see the signs, but I have come home from work from running errands and have found him hallucinating, semi comatose, and in a coma after being gone just a couple hours. He has been in the hospital so much that people know us by name at the hospital.
It was very wonderful that you had the chance to have your marriage blessed! The wonderful memories you have of your husband are yours to keep. I know you are going through a hard time now, so be kind to yourself, take one day at a time. Would enjoy talking to you more.