Update on Gene

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Barbara P
Regular Member

Date Joined Feb 2006
Total Posts : 256
   Posted 11/27/2006 11:14 AM (GMT -7)   
Hi Everyone,
It's been quite a few months since I've posted. I've been in a shell and feeling overwhelmed.
Gene's rollercoaster ride continues. He's had one major crisis after another and somehow manages to pull back from the edge just in time. He wasn't named Miracle Gene for nothing.
My Gene has very little energy these days and sleeps most of the day. His encephalopathy changes depending on what is going on in his body. Gene was very ill over Thanksgiving, unable to eat or find the energy to get out of bed. He lost ten pounds over night but the ascitis and edema are still bad. And Gene's breath sounds are diminished. His rotating antibiotics seem to be controlling his level of toxins.
Gene continues to receive palliative hospice care and our current team is compassionate and willing to be there for us. Every two weeks Gene sees his Oriental Medicine doctor who prescribes herbs. On Saturday, he explained that Gene's need for sleep and symptoms were from his body detoxifying itself. And that overall he is a tiny bit stronger. I'm holding onto his words and praying this is the case. On the other hand, Hospice is saying it is Gene's liver finally giving out totally and the end is coming.
Gene's esophageal cancer is stable. That is the most remarkable part of his condition. He has had no surgery, chemo or radiation but in almost three years, his cancer has not spread. Swallowing is becoming a little difficult and we have to be careful Gene does not aspirate with thin liquids.
I think that about brings things up to date on Gene.
I have emotions all over the place ranging from fear, anxiety, depression, acceptance to joy. That seems to be part of the caregiving, spousal journey.
I hold you in my thoughts and prayers,

                     LIVE IN THE MOMENT!
                          Hugs and Prayers

Veteran Member

Date Joined Mar 2006
Total Posts : 605
   Posted 11/28/2006 6:20 AM (GMT -7)   
hi barbara,
so glad to hear from you. I knew you were around,,,,I had thought about asking what was going on but instead of asking straight out, I figured youd let us know what was going on when you were ready. I am so sorry things havent been good for Gene and yourself. Im sure you are very confused and anxious during all this. As for the seemingly conflicting answers from hospice and the chinese med dr,,,I guess the best thing to do is prepare for the worst,and hope for the best,,,:huge hug for you: I will be keeping you and Gene in my thoughts and prayers,as always.
Life should NOT be a journey to the grave with the intention of arriving safely in an attractive and well preserved body,but rather to skid in sideways,chocolate in one hand,wine in the other,body used up ,totally worn out and screaming"WOOOOHOO WHAT A RIDE!!!" 

Regular Member

Date Joined Apr 2006
Total Posts : 122
   Posted 11/28/2006 12:42 PM (GMT -7)   
Hi Barb,
My thoughts and prayers are with you and Gene. The best thing for Gene at this point is all your love and support. Just be there for him. He appreciates that, I'm sure. I'm so sorry that you have to go through all of this, I know it is very difficult. Please take care of yourself the best you can. You need strength to see Gene through this difficult time. God will take care of you both. Please update us the best you can.
*Hugs, Thoughts, and Prayers*
   *Shel in New Mexico, USA*

Regular Member

Date Joined Dec 2005
Total Posts : 446
   Posted 11/30/2006 3:29 AM (GMT -7)   
Hi Barb,
I too am sorry that Gene is not doing so well. You are both in my prayers. Look after yourself.


Regular Member

Date Joined Jan 2006
Total Posts : 402
   Posted 11/30/2006 1:00 PM (GMT -7)   

Hi Ma, Just saw your update. Things have been very hectic and scary here. Hope the Oriental doctor is right about him. I can relate to your feelings so well! Want you to know that You and Gene are in my prayers.

Love Teresa

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