Hello Pink grandama, welcome to HW. I really don't know if the stroke will keep him from getting a transplant, it just depends on the severity of the stroke, I am guessing. I have found my husband several times in stupors and comas. His were being caused from infections. He has not had high ammonia levels in over a month now. I will keep you and your hubby in my prayers, to be placed on the transplant list.
Trish, BIG ((((((HUGS)))))) to you, I know how you are feeling. I know I want my life back!! I am tired of the stress. I want my family to have a normal life again. But I keep my faith in God everyday, not just when I need him. It keeps me sane. I am not positive all the time and I definitely am not perfect, I am human and full of mistakes. We can't turn the clock back, but we can go forward, and hopefully we will make better choices.
Hugs and Prayers to All!!!
Hi Pinkgrandma, hope your husband is doing better and they have the infection under control. There are just so many things that can cause the encephalopathy. Be sure to get some rest!
Hey Pink grandma, The hospital my husband was at, really didn't have the specialist he needed. They had a gastro doc with very little experience in liver patients, and he is only in town on Tuesdays and Thursdays. He was making all kinds of mistakes on treatment and he was making the condition worse. It is a patients right to recieve proper medical care, if the facility can not provide it you can request to be transfer to a facility that can! Marks PCP, had no problem with it, he wanted Mark stabilized. I know about the co-pays and drug co-pays, it does get very expensive. We have private insurance too. Mark did have a pretty bad episode of encephalopathy this past Friday to Sunday morning, I think he may have a sinus infection or it may have been the TIPS working. He took off 20 lbs of fluid this weekend, but was also started on antibiotics, so who knows? I hope it was not the TIPS causing this, if it is I will eventually have to quit working til he gets transplanted. He can't be left by himself like that. Just more stress to add to the stress!!!!
I hope your hubby gets to the transplant team soon!!! (((Hugs)))
Pink Grandma, Mark has had a unbelievable week!!!This why the disease is so complicated! He has gone for a couple of walks this week, Christmas shopped, help decorate the house, , cleaned the car out......etc... He has been the wonderful man I fell in love with 10 years ago!!!I do know he can go down at the drop of a hat, so I am enjoying this while it last!!!! It seems that the TIPS is taking the fluid off and he can move around better right now! Hope you have a good weekend!!!