2 diabetes and liver disease

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New Member

Date Joined Feb 2007
Total Posts : 14
   Posted 3/29/2007 12:51 PM (GMT -7)   
hey tell me if anybody knows or if you have delt with this before my mom has been diagnosed with type 2 diabetes. well there is such a thing called liver diabetes. patients with cirrhosis develope it . my mom was diagnosed with end stage liver disease 4 years ago she has had hep c since she was 19. i was 9 when she was diagnosed with cirrohsis im 22 now. about a month ago her ammonia levels rose pretty high they increased her lactilose 4 times a day at 45ml a dose. to much. and it dont work no more she takes neomyicn i was just reading about type 2 diabetes and cirrhoisis. and it came up that infact she dont have type 2. its liver diabetes. the 2 are hard to figure out when you have cirrhosis. doctor have told me that they think my mom has about a year if she continues to take her meds and eat right. she is in a assited living which she just moved in there a week ago.from a nursing home. hospice has already came in and talk to her. they said that they can come in at anytime when it is time and take care of her. she has a large speen her white cell count is at 2000 becasuse her spleen is eating them to stay healthybut its getting sick now which is due to esld. her count is supposed to be between 6000-11000. so yeah she is sick and i just read that with diabetes and cirrhosis you have a shorter life expectancy is this true i know that theres nothing they can due for her she isnt edgible  for a transplant becuase she has a certain type of staph its mrsaa reacurring staph she takes bactrum. they have her on morphine and vicoden she acts like a zombie when she takes the stuff cause her liver is so poor. but on the brighter side she is cohearant and likes to wlk to the store. my cousin and her family come and pick her up for the day but latley she says my mom is like a zombie. IT JUST SUCKS MAN sad   THANKS FOR LISTENING
please people i need some support im not as strong as everybody keeps telling me
i know my life will go on but i was raise by her as an only child and only by her my dad i didnt know until i was 10 and even then he wasnt there.
so  if anybody can share a little strenghth and courage it would be appreciated.i can handle the truth to.

Regular Member

Date Joined Dec 2006
Total Posts : 87
   Posted 3/29/2007 2:03 PM (GMT -7)   
confused  hi mommyangel,
 this forum will do the best they can to keep you going, we to well how hard it can get watching a loved one be very sick all the time. and there is nothing wrong with not wanting or cant always be the strong one.
 i m your mothers age, and i just lost my father to this horrible disease i didnt know he had it untill july of 2006 and it was a nightmare untill december is when he passed. my mother i lost 12 years ago she was always sick i only recall two years out of my life her not being in the hospital, she had many problems. im an only child to so i know how you feel. my father was never really sick so when this happened it was like i was in another world, its still very hard to deal with sometimes. i know that you are very young, but just try to enjoy her when she has her good days. my father had the type 2 diabetes to for at least 25 years. way before we found out about cirrhosis.
we really dont know what caused his cirrhosis and it doesnt matter now, because now hes not in any more pain and all the things that go along with this horrible disease. i couldnt stand watching him like that anymore it just wasnt him and he didnt want to be like that., just about one of the last things he said to me was he didnt want anything more done, so we just try to keep him comfortable and we did. its hard to deal with the fact that your going to lose somebody that you love very much its only a natural response. and you can only do so much some times we all need a little help.  AND YOUR RIGHT IT DOES sad SUCK!!!!!! even at my age, sometimes llife really does suck. you can just do the best you can and no more. i know you have heard this before, but just enjoy her while you can. good luck young lady.
my email address is on the forum so if you need to talk just give a yell.
you and your mom are in my thoughts.
myfathers child

Regular Member

Date Joined Mar 2007
Total Posts : 33
   Posted 3/29/2007 4:42 PM (GMT -7)   

Hello and welcome.

I'm sorry to hear about your mom.  My husband has HCV/Chirosis.  He is on the liver transplant list.  I'm here to tell you that I know exactly what you are talking about when you say "your not as strong as people think".  I feel the same.  Yet somehow everyday, I get up go to work, come home and take care of my husband.  Sometimes I wish someone would just come in and say, Pati, go ....  just go and relax, don't worry about home or work we'll handle everything.  Oh wouldn't that be a dream!  But I think we are stronger then even we think we are.  We work for peace in our lives, and keep going until we get it.  So, anytime you feel like you are weak....give us a shout.  Someone is always quick to answer and lift me...they will be here for you too.

Pati yeah

New Member

Date Joined Feb 2007
Total Posts : 14
   Posted 3/30/2007 12:41 PM (GMT -7)   
Thanks for the reply. I talked to my moms doc today and he said that my moms liver is dead and its not functioning. I double question him and he said what he said. A year is there best estimate, He said my mom may go alot sooner than that. AHHHHHHHHHHHHHHH I m just so tired of this crap. I mean shes dying i get that. but im not ready. It just suck because she cant get a transplant. The other out come is death. She sleeps all the time. she dont go to my cousin hockey games anymore. her pain medicine is affecting her more intensley and im just adjusting. All i can do is take one day at a time. and wait for that phone call. man it just sucks that i cant cure her or the doctors cant either. n e ways im greatfull for this forum its been real helpful thank you all :-)   autumn

Elite Member

Date Joined Jul 2005
Total Posts : 12014
   Posted 3/30/2007 5:43 PM (GMT -7)   
Autumn, (pretty name!), do you have family and friends to help you get through this? We are here for you all the time, but it's not quite the same as in person. I sleep more than doing anything else....anywhere from 13 to16 hours a day. There's just no energy. Don't be mad at your mom for that--it's the disease. I'm mad as h--- at the disease, myself!


New Member

Date Joined Feb 2007
Total Posts : 14
   Posted 3/30/2007 6:12 PM (GMT -7)   
Thanks connie for the input. Yeah I have support but for some reason thats not enough. I dont know how to except this. I know that theres nothing that can be done. I tlk to her doc today and I was told that her liver is dead and not functioning. To me that sounds like she may not have 6 months or a year. He said his best guess estimate is 1 year. but with the way things are going she may go alot sooner than that. How do i execpt that. I guess I have to just buck up and let myself. I dont know

Regular Member

Date Joined Dec 2006
Total Posts : 87
   Posted 3/31/2007 1:23 PM (GMT -7)   
smurf  hi autumn,
 i think the hardest part is you feel so powerless and you just dont know what to do, i was mad at the world when i lost my father, i had my husband and son but my son was no help he was a bigger mess than i was, he was very close thank god for my husband!!
 you except it you really dont have a choice, i know its sounds cruel but its the way it is.
 i kinda been mad at the world anyway!!! does she really need all that pain meds? with her liver not working thats part of the problem being a zoobie.
 you have to try and enjoy what ever good days she has, and its hard.
 were here for you any time. my email is on the forum if you need to talk.
take care, and keep in touch

Jim's wife
Regular Member

Date Joined Dec 2006
Total Posts : 31
   Posted 4/1/2007 1:00 AM (GMT -7)   
One word for you: Hospice.
Interview 2 or more of them to determine what they consider appropriate care for your Mom in this situation. They will provide care in facilties such as hospitals and nursing homes, and sometimes their own facilties. I am pretty sure your Mom would qualify.
What my husband gets with hospice at home: all meds and procudures that are appropriate under his ESLD disgnosis; an aide 5 days a week to clean him and his room up and make him breakfast; a nurse once a week (more often if needed); pastoral and social worker counseling for Jim and me (his only family), as requested. Incredibly, my husband had improved remarkably and we expect him to be dischared from hospice soon. He's even driving again.
Don't give up on your Mom yet. Jim was in ICU twice, when the DRs had me sign DNR orders. That was really tough.
Another thing I want to convey. Jim has NO MEMORY of when he was so sick, like in ICU. So I think I can say you Mom will have little or no memory of the experience. That is good, and might put your heart and head at peace.
Venita and Jim
Wlmington DE

New Member

Date Joined Feb 2007
Total Posts : 14
   Posted 4/3/2007 1:59 PM (GMT -7)   
Thanks Venita.
 She saids she has already done her assesments with hospice and there just waiten for the ok I guess. One thing I dont understand is why arent they putting her on hospice if the liver is dead and not functioning ya know.
 I did read something about the liver producing dead liver enzymes when it get as far as it can go before shutting down. Is the next step cancer or is it death.
Her doc said a year ago that her liver is severly de-compensated and cirrotic from the disease. 
Well what ever the outcome of this terrifying illness, I just hope she has a chance to feel that her family loves her and
we are there when its close to her time.Her doctor said that even though her pain meds affects are much more stronger do due liver not working he said thats the key to keeping her comfortable because her meds wiil soon be no help. And then he was real blunt and said if she is lucky she may have a year,giving her a greater chance oh devolping cancer, or she may have as little as 6 months.
 The strangest about all this is that she is for the most part feeling ok.
she is in pain from her liver hurting her  pretty bad and she is tired.
but her ammonia levels are high and she isnt confused yet. she takes neomyicn and lactalose for hepatatic encephalopathy. she got that for years ago when she was diagnosed with esld.
Doctor said because of them being so high it takes more time to build up. But she is showing sign of her nerves acting delicate. well I'm going to miss her but it will all be good stuff that i think about my mom when i miss her.  Hey Ive been told that I'm being  to hard on myself and im much stronger than I think  and I know that i StILL Dont want to give her up yet im only 22 my daughter is only two 1/2 and I just am going to miss my best friend.

New Member

Date Joined Apr 2007
Total Posts : 1
   Posted 4/5/2007 5:48 AM (GMT -7)   
hello to all
i'm new here. this forum gives me a lot of comfort. my father is also suffering from cirrhosis. he was diagnosed with that disease last dec. 2006. his stomach swelled like he's pregnant, he's tired all the time, lost appetite, had nosebleeds. my father was healthy as a horse so we were shocked to know that his days might be counting but his doctor is positive that with proper diet, salt rstriction and proper fuild intake, he could live a normal life. however i don't want to have my hopes up. i'd rather prepare myself and my family for worse outcome. but i'm still scared, very scared. i don't want to lose my father but seeing him agonizing in pain and discomfort breaks me heart.
only God can tell my father's future, our future so it would be best if we lift up all our troubles to Him. God will take care of us.

New Member

Date Joined Feb 2007
Total Posts : 14
   Posted 4/5/2007 5:07 PM (GMT -7)   

hey I just wanted to say regaurdless of what the doctor says it only matters about the actual person who is sick.Does he have end stage liver disease, its what you get when you are far advanced with cirrhosis. My mother was diagnosed when I was 9 I am now 22. She was diagnosed with end stage liver diasease about 4 years ago. doctor said she is lucky to have made it this far. he says she should be dead right now but she is not. my moms liver isnt producing live liver cells anymore thay are dead. Her liver is completely damaged from the cirrhosis. Doctor said there is no more healthy part of my moms liver. she is not edgiable for a transplant. so the worst. I feel the same way. i was raised as a only child by my singled parent mother. it was always me and her. im terrifyed. But theres nothin they can do for her anymore. doc said too, that if my moms diet and medicene is still working she may have a year left. but if it doesnt she may pass a lot sooner. Its in gods hands. Really!!!!!!!!!!! I'm waiting on the phone call from the doc to tell me that my mom only has a couple of weeks. Sweety the best advice i can give you is try to use all the options to get him better. it might not be to late to do pegusis interfearon. my mom tryed it a few years ago and she was a non responder.it made her too sick. but some people can get rid of it if caught early enough. next option is transplant your dad might be able to get one. my mom couldnt. and if none of that works then just enjoy the time you will be able to spend. sorry if its not what your looking for. :-)

Regular Member

Date Joined Dec 2005
Total Posts : 446
   Posted 4/6/2007 2:03 AM (GMT -7)   
Hi Autumn.
Just remember that your mom is your angel. And you are hers. Enjoy what time you have left together. Get the best advice from the medical people and pray that she will not be too uncomfortable.

Prayer is valuable. I will certainly be including you and your mom in my prayers. (praying for that miracle she deserves)

Take care.

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