Hope I'm Not Over-reacting

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Barbara P
Regular Member

Date Joined Feb 2006
Total Posts : 256
   Posted 5/16/2007 11:20 AM (GMT -7)   

Dearest Friends,

I don't know if I am over-reacting or whether my Gene has reached a new stage in the course of his illness.

For the past week, I've noticed new and different subtle symptoms. Gene is having difficulty formulating what he wants to say and word finding problems unlike anything I've seen previously from his hepatic encephalopathy. Yesterday he was trying to tell me he had organized my closet and put all my jackets in one place but he kept saying my vests or coats were there and he used the word bathtub for bathroom. There have also been changes in his personality; he is busy organizing and changing things around the house. I'm starting think this is brain mets rather than liver related and will speak with the hospice nurse today. And you already know how helpful Vitas has been in the past.

There really is no point in doing scans or tests as Gene's liver cannot tolerate chemo or radiation. So we will just wait this out and see what happens. If his symptoms improve it will likely be another form of hepatic encephalopathy. If the symptoms worsen or new ones develop, then we will make him comfortable and continue holding each other close, cherishing our memories. Especially those of our trips to the Rose.

Please keep us in your thoughts and prayers. I've walked in the light for the past four weeks. If this is the other shoe falling, I will face it headon and not return to the blackness. My support will come from God, myself and others in my life; not hospice.


                     LIVE IN THE MOMENT!
                          Hugs and Prayers

Pink Grandma
Veteran Member

Date Joined Nov 2006
Total Posts : 2445
   Posted 5/18/2007 12:12 AM (GMT -7)   
Dear Barbara, my husband also experienced those exact symptoms. It happened right before he started having focal siezures in his right hand/arm, and also when he experienced a minor stroke that the doctors said he had last December. He went back to his old self within a couple of days.
I'll be praying that it is also the case with your Gene. Hang in there. I know how very scary it is for you. All of us are thinking and praying for you. Lot's of hugs and prayers..........Pink Grandma

Elite Member

Date Joined Jul 2005
Total Posts : 12014
   Posted 5/22/2007 10:09 PM (GMT -7)   
I've been experiencing the same thing, but attribute it to general anesthesia...9 times within the past 5 years...plus now taking percocet for post-op pain. It's affecting my typing, too.


Veteran Member

Date Joined May 2007
Total Posts : 1491
   Posted 5/23/2007 9:06 AM (GMT -7)   
I have known people with those types of symptoms and one thing I would watch out for is hepatitis coma. This can happen with people who are experiencing liver failure and should be watched out for. Sorry for your struggles, but I do not think your overreacting to be concerned. Wide changes in behavor can often be the indicators of what i mentioned above and also seizures as other people meantioned and shouldn't be dismissed.
HIV/AIDS and HepC Education/Prevention Coordinator in Canada
Suffers from Bi-polar and asthma, Partner with Depression and Gender Identity Disorder, Son with ADD and epilepsy

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