Jamie, I'm glad to hear that your mom is sounding more positive! After the surgery for excision of the right lobe of my liver, I lost 10 lbs w/o even trying...mostly fluid, I'm sure, but the swelling has gone down. Doc says that a little remains. I told him some is belly fat! LOL! The Mayo Clinic in Jax has a charity program, which approved me on a year-to-year basis. You have to submit records of income, bank statements, etc., to see if you are eligible. My primary insurance is Medicare. Secondary is Medicaid Medically Needy, and then the charity program picks up any balances not paid by the insurance. I am sure Mayo Rochester must have the same program. They don't advertise it or even tell you about
it. I happened to see it on their web site and applied at their financial services office. If your mom has any large investments, IRAs, savings, etc., now is the time to have those closed or signed over to you. And sometimes you just have to deny that anything has been sold or transferred. I don't feel guilty about
a fib when your life is at stake.
Medicaid pays for transplants, though I am not sure about
a living donor transplant. Please keep us posted! OH! When I was there on Fri., I was reading a Mayo publication which noted that they have a ONE MONTH wait for transplant. (I'm guessing this is after being placed on transplant list.) I am not sure if this is just in FL, or if it's true for all 3 Mayo clinics. I will try to find that publication tomorrow while I'm there for blood work, to check this out. Sure, the info they give about
transplant complications is scary...but they are obligated to tell the patient of possibilities. I ask them for percentages. At any rate, I think your mom will find she will get a transplant much sooner than expected.
Post Edited (hep93) : 6/17/2007 4:58:28 PM (GMT-6)