Hi, Stephanie and welcome! It's great that your mom got on the transplant list. I was diagnosed with hep C in '93, but couldn't tolerate the interferon (which is all they had at the time.) Aside from terrible fatigue, I was okay until 2 1/2 years ago when I was found to have an enormous liver tumor, which had metastasized to the inferior vena cava...and it was considered inoperable at that point. I didn't qualify for a transplant because of the metastasis, and because my liver function remained fairly good. By then, I was being seen at Mayo. They did one chemoembolization and one treatment of a new drug, Therasphere, that was part of a study. Between the two, the tumor was killed and the part that had metastasized shrank back into the original tumor and was killed. I then had surgery in May of this year, by a Mayo doc, to remove the entire right lobe of my liver, as well as my gall bladder. I won't lie--it was rough the first few days, even though I was given the pump and injections of morphine. Thankfully, the pain became less each day. I was able to go home on the 8th day. BTW, I am 64 and live alone.
It wasn't a transplant, but close to it. I am followed at the Mayo Transplant Center, and still being seen there frequently for blood work and medication control. I retained a lot of fluid (ascites) and was placed on Lasix and Aldactone. I lost 10 lbs. within a few days. However, we've had some trouble controlling my potassium. Therefore, they keep changing medication dosage.
My experience is that the docs will keep you as comfortable as possible, but there is some post-pain. It's well worth it, though, to be rid of the cancer. Of course, I still have hep C. I know that they won't allow me to try treatment until I'm 6 mos. post op. I also developed a hernia at one of the incision sites. I have to wait until I am fully healed from the liver surgery before the surgeon will repair it.
Good luck to your mom! I hope you will post again and let us know of her progress.
Post Edited (hep93) : 8/3/2007 11:15:54 AM (GMT-6)