new to liver disease, possible final stage

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New Member

Date Joined Sep 2007
Total Posts : 3
   Posted 9/15/2007 12:22 PM (GMT -7)   
Hi my name is Gennara, and my spouse R.D. may be in the last stages of liver failure. I really dont know what to expect. I have been told many things and get so upset hearing it all. I heard that when one starts talking irrationally they don't have long to live. Others say thats not true. RD has hep c for 25 yrs, and has drank so heavily. He has not drank for 3 1/2 weeks now, and is on medicaion, due to being locked up. I keep in touch with the nurse at the jail and she has finally listened to me about him taking lactulose. I try to help in all ways that I can, but he is confused and sometimes gets very upset. I feel with him being in jail I cannot do much except for keeping in close contact with the jail nurse. She is the only one who can tell me anything. What can I expect and what can I do? I feel so helpless at times, get very depressed, and cry alot. His family does not help me, I am carrying this ball all by myself. Some in put or insight would be so grateful at this time. I found this forum and feel so releived that I did, I finally had a sense of calmness lastnight when I wrote to okielady. I had to talk to someone. Sometimes I feel like I'm loosing my mind, even tho I know it's still there. I know it dosent sound good him being locked and all, but I dont want to tell a lie or leave anything out.He is a good kind loving man, but had not taken his lactulose for awhile and started acting irrational. He decided to live by himself when I put my foot down on his drinking. He said I was being mean. I wasnt tho, I just love him so and was trying to save his life. He knows he could die from drinking and wants to quit but he is a severe alcoholic. At least being in there I know he's not drinking and is getting help. Maybe things will start making more sense to him, and he'll realize he will die if he dosen't change. I did not realize what was going on with him until things started happening when he moved out. I should have done things differantly I guess. I feel so bad. Can someone let me know if he will come out of this irrational behavior. Thank you for listening and letting me vent.

Elite Member

Date Joined Jul 2005
Total Posts : 12014
   Posted 9/15/2007 2:04 PM (GMT -7)   
Hi, Gennara, and welcome to the forum. It does sound as though your hubby is in end-stage renal disease. You need to continue to keep close contact with the jail nurse, and make sure he is getting the right amount of lactulose. That will hopefully keep him from being irrational. Don't be so sure that he isn't drinking. They seem to manage to get it or make it in jail, as well as having street drugs smuggled in. Do you know how long he will be locked up? There is no chance of a transplant as long as he is drinking. Drinking alcohol is the worst thing for anyone with liver disease. Since he has only been alcohol-free (we presume) for 3 1/2 weeks, he is still detoxing from that. He would not be eligible for hep C treatment, either, at this time, due to how sick he is, but he can't get treatment, either, if he is drinking. I, too, have hep C (contracted in the late 60s) and developed liver cancer. However, at the time of diagnosis of chronic active hep C, I had been sober for 7 years. Thank goodness. I know that if I had continued drinking, I would not be here today (with 21 years of sobriety), cancer free.

Hep C and cirrhosis are such individualized diseases. Not everyone has the same symptoms or outcomes. I never did have high ammonia levels (which cause the confusion.)

You cannot do much more than you are already doing for your spouse. Pray for him and try to keep tabs on how he is doing.

You are welcome to come back here anytime you feel the need.

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