cellcept and trying to conceive

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Regular Member

Date Joined Apr 2007
Total Posts : 24
   Posted 10/4/2007 7:57 AM (GMT -7)   

A little background about me: I have AIH (auto immune hep) and I have had a lot of side effects from the steroids so of course my doc wants me off. I started to taper down the ‘roids and started @ 500 mg of Cellcept twice a day. Things were great until I got down to 9 mg of the prednisone my levels went crazy so I'm back up to 20 mgs of pred. and they want me to go up to 750 Cellcept twice a day.


Current issue: I am scared to death to take the Cellcept. I am scared of what it is doing to my body. My doc says it’s a fairly new drug, so it scares me that I'm doing some other kind of damage. I want to get pregnant by the end of the year and you are not supposed to while on the Cellcept. You have to stop it 6 wks before u even think about getting preg. im waiting for my numbers to be good again before we start trying but in the meantime:

·        Has anyone had a hard time trying to conceive right after stopping Cellcept?

·        Can it make you sterile?

·        Any problems with your baby after you waited the 6 wks before conceiving?

·        Any other info you can provide?

Strength, Patience, & Confidence

Pink Grandma
Veteran Member

Date Joined Nov 2006
Total Posts : 2445
   Posted 10/5/2007 8:17 PM (GMT -7)   
Hello Lilacluv, Unfortunately I do not know anything about Cellcept myself. Have you tried googling it? You should be able to find some of the answers to your questions by googling it. If you don't then have a straight talk with your physician or even a pharmacist. Good luck :-) :-)
Pink Grandma
Forum moderator-Hepatitis

When the going gets tough....the tough get going!

New Member

Date Joined Oct 2007
Total Posts : 5
   Posted 10/7/2007 6:14 PM (GMT -7)   
Hi LilacLuv. I just read some stuff on Cellcept and I can understand your concern.

"CellCept has caused birth defects in animals, and there may be a similar risk in humans. Do not use CellCept if you are pregnant. Tell your doctor if you become pregnant during treatment. To make sure you are not pregnant before using mycophenolate, you may need to have a pregnancy test within 1 week before your treatment starts.

Unless you have had a hysterectomy, you must use effective birth control to keep from getting pregnant while using this medication. Birth control is recommended even if you have have been infertile (unable to get pregnant) in the past. Use two effective non-hormonal forms of birth control (condoms, diaphragm, or spermicides) while you are using CellCept and for at least 6 weeks after your treatment ends.
Do not open the medicine capsule or crush or chew a tablet. Do not use a pill that has been accidentally broken. The medicine from a crushed or broken pill can be dangerous if it gets in your eyes, mouth, or nose, or on your skin. If it does come in contact with these areas, wash your skin with soap and water or rinse your eyes with water. Ask your doctor or pharmacist how to safely handle and dispose of a broken tablet or capsule."


I have not been completely diagnosed with AIH but it seem a good chance that is what I have. So I am trying to wrap my head around it.

I would like to have one more child (have two daughters) so medication and fertility concern me as well. I read some where that being pregnant was actually good for AIH (how true I don't know). It makes since though because the immune system goes down during pregnancy.


Regular Member

Date Joined Apr 2007
Total Posts : 24
   Posted 10/9/2007 11:38 AM (GMT -7)   
DeeMots - I can’t wrap my head around putting something in my body that sounds so dangerous.
I have found nothing on the internet that gives any definitive answer. I actually read that because the drug is so new no one will have an answer. It’s scary. I have already lost 3 children and my fear of losing more or not being able to have more makes it impossible to put that pill in my mouth.

Thanks for your help DeeMots & Pink Grandma:)

Strength, Patience, & Confidence

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