I do understand the back to back doc appointments, thats the way they set up my moms since we live almost 4 hours from the transplant center. We just got back last night around 9 and was dead tired and still am today, matter of fact I just woke up from a long nap. You are right when you say it seems like when their toxin levels go up it is like they have Alzheimer's. And act like little children when they don't get what they want. Like my mom keeps a litter box in her room casue one of our cats adopted her and stay with her all the time. I went in the get her laundry and there was no litter in the box, I asked her where it was, she said she used it, don't quite know yet what she did with it since it was a scoople litter. Or her coming out and telling me the cats knocked over her tv. She has a 32 inch tv. So you tell me lol. Oh she does not lile to be told no.
Anywho like I said we just got back from 2 days of testing. Her MELD score went from a 10 to a 13 in little under a month. But if things keep going the way they are she wont be able to have a liver tansplant She has sever lung problems, they docs could not believe that she was not on more inhalers then she is. She has to go back useing her C pap machine and 100% stop smoking, loose some weight and get out of her room more. That one we have been working on. But if she looses up to 5% more of her lung serfuce she wont be able to have the transplant. So it loose like we could be going for lungs instead of a liver. We have to go back in a couple of weeks to have her nuro testing and EEG or EKG done. She is at this point on the transplant list, just very low on it.
We have a wonderful social worker there, she worked with my moms worker here and our room for the 2 nights only cost us 45 out of pocket and we both got a pre-paid food card for the restruant in the hospital. And the amounts we could spend where realy good per meal.
Connie I am dido with pink grandma, if we where closer I would drive u also. Good luck on your testing. Hugs and prayers always.
Well since I feel like I just wrote a short story for readers digest, I should close. Oh one more thing, in the gift shop at the hospial they have a t-shirt I want to get, it says ( The ulatament Recyling Organ donation. Please for give my spelling errors.
Peace, As always,