Good morning Toni, So glad you and your son got through his endoscope fine. It is also good that his meld score is so low. It means that he has plenty of time to take care of himself and get all his ducks in a row before the need for the transplant. I know the waiting is a very hard part of the process especially for the caregivers. You are ahead of the game. Most people don't start getting the education on it until the disease has progressed along further. It's good to know what you are up against early so that you can take defensive steps earlier.
Our oldest granddaughter was 5 1/2 when my husband died. She had a very close relationship with him. So she asked both him and me a lot questions about
his being sick. We kept it simple but truethful for each question. When it came to the real hard question " Is papa going to die?" My answer was ...I hope not. That's why we are taking him to the doctors so much so that he won't. But just in case keep papa in your prayers. You know it was part of her prayers every night for at least the the year before he died was for Jesus to keep her funny papa safe. Her faith has helped her tremendously with her grief now that he is gone.
Hang in there Toni......and remember to concentrate on you sometimes. Caregivers tend to give their all to the patient, that they rarely take care of themselves. I know that for the last 2 years I actually lost myself and didn't even realize it. I am just starting to find myself now. Thoughts and prayers.
When the going gets tough....the tough get going! Don't always know where I going but I get there anyways.
Post Edited (Pink Grandma) : 12/13/2007 6:37:17 AM (GMT-7)