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New Member

Date Joined Jul 2007
Total Posts : 8
   Posted 5/28/2008 11:18 AM (GMT -7)   
Hi everyone.
I am 29 years old and have IBS-D.
I have seen a Dr. Lang a hand full of times here in Houston, but have never felt that he really had any plan or course of action. I had a sigmoidoscopy and everything came back fine, but other than that haven't pursued anything further.
I have read some of the posts on here and can totally feel people's pains.  IBS has really made it clear how much of the world revolves around food, and how much that affects me directly. I avoid eating in almost any social settings and on trips. My wife and I went to Europe for 2 weeks last year and 95% of my meals were ham and cheese baguettes, because it was safe for me to eat when I was out and about. I just flat out don't eat in some cases. In college I twice drove 18+ hours with friends to ski in Colorado and didn't touch food the entire trip until we were in the hotel.
As other people have noted, sometimes IBS seems 50% mental. We just went to Napa Valley and one morning we went on a hot air balloon ride. We had to leave at 5:00 a.m. to meet up for the ride, and beyond that I knew no details. All I knew was that my stomach is very hit or miss in the morning and an hour or more trapped in a balloon with no restroom scared the crap out of me.  Afternoons are ok, because I can wake up, see where my stomach is, and take whatever steps I need from there (Immodium, etc.), but 5:00 a.m. is no good. I woke up at 3:00 and read in bed giving my stomach a chance to "wake up". All was fine until right before we had to leave and then my nerves forced a trip to the bathroom. Once we met up at the general store with the group I had to make one more trip there. Once we actually got to the balloons and in the air my nerves were gone and I had a great time, but the anxiety beforehand cripples me. I even have a prayer I do while sitting in the restroom just praying my stomach will be ok.
For the most part I have coped and lived with IBS, but it still comes on at times even when I think I am doing everything right. 
The main reason I am posting is because the first week of October my wife and I are going to have our first child (a little girl), and I am really nervous about IBS preventing me from being a great dad.  Being a parent means being there all the time, and what am I going to do when my stomach doesn't want to play nice?
Does anyone have a doctor recommendation in Houston? I posted a while back and remember quite a few people recommending someone, but I can't find where I wrote that down and the search function isn't bearing any fruit. It's tie for me to pursue things a little more and see if I can't find someway to get IBS out of my life.

Veteran Member

Date Joined Apr 2005
Total Posts : 3269
   Posted 5/28/2008 1:04 PM (GMT -7)   
Hi Jim,
Welcome back to the site!
I'm so sorry to read how IBS controls your life... It pretty much does so for all of us. I recently was in a wedding in Idaho, out on a ranch, and the bathrooms were port-o-potties. I about pooped my pants when I saw it. Thank goodness I saw it the night before the ceremony at the rehearsal dinner, therefore preparing myself. All night long I was so nervous about it I ended up in the restroom a handful of times. The day of the wedding, I popped Imodium and dispersed it to anyone who wanted to avoid the dreaded box-o-poop.
Anyway, I know this isn’t a long term solution, but do you ever just take Imodium for preventative purposes? I do it often... Like if I have a date, a special event I can’t miss, a long car trip, or long plane ride. I even carry Imodium around with me in my purse. Sometimes it just helps knowing it’s there.
Are you taking any probiotics or eating yogurt? It might be a good idea to start with a good gut flora.
Sorry, I can’t help you with a Houston doc. Hopefully someone will come along who can.
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New Member

Date Joined Jul 2007
Total Posts : 8
   Posted 5/29/2008 6:17 AM (GMT -7)   
Oh yes, Immodium is my best friend. I have often thought about buying stock in that company :) I use it all the time as a preventative measure.

Regular Member

Date Joined Oct 2005
Total Posts : 78
   Posted 5/29/2008 8:32 AM (GMT -7)   
My son will be a year old in a little over a month, man where does the time go, brings a tear to my eye.

I have the same worries, how am I supposed to take him to soccer games, baseball games, school plays, etc, when I barely leave the house to entertain myself and my wife. And I agree about the mental aspect. It seems its 75% mental, 25% food induced. I had gotten better, but then slipped some. Lately I have been placed on Simax, and Align, which for the most part works, other than the length of time between trips to the washroom, and the blurred vision, and dried out body; but my nerves still make things tough, even though I know I have nothing to worry about, I always worry about control. I have to eat, unlike a lot of the rest of you on this board, for some reason I cannot go without food or my stomach starts its revenge. I have started a huge battle against my habit of over eating, which seems to help a huge amount. My poor wife expects a night day change each time I get a new set of pills. After a week she is like, they aren't working, you need new ones, drives me nuts, this stuff takes time dear. My last trip to the Doc about a month ago had me weigh in at 248; and I know I have lost some weight since then, maybe 5-10lbs. All my jeans fit much better. I hate being over weight, I was always skinny until IBS set in, oh well just another one of life's challenges I guess.

So anyway, slightly off tangent there, I know how you feel and deeply fear missing out on my son's future because of this stupid 'disease' they can't find a cure for...slackers, what are we paying them so much for :)

New Member

Date Joined Jul 2007
Total Posts : 8
   Posted 7/28/2008 6:35 AM (GMT -7)   
Thought I would bump this to the top in case some Houstonians happened to log on.

Veteran Member

Date Joined Jul 2007
Total Posts : 1956
   Posted 7/28/2008 7:39 AM (GMT -7)   
I about needed a bathroom visit myself after reading about your hot air trip. Yikes, you poor guy!!! I am 53 so I feel as though I've lived a somewhat active life already. Not that I'm willing to hole up in bed, with a heating pad, glass of water, my trusty Club Crackers and the TV remote (and oh yeah, my Golden Retriever nearby). But I am quite content to live a quiet life, nonetheless. My daughters are now 18 and 21, ready to take on their own lives and I'm not needed as much. The only glitch in this plan is my husband bought a ski boat this past April, so like your hot air balloon trip, I have stressed out about how in the world I was going to manage being on a boat all day long. Yes marinas have bathrooms but they are often times marine toilets and you can't have the rest of the party wait for you, on the boat while you're taking care of things.

My point is I've just let things go and I've said no to a lot of things in my life. I have 2 pushy sisters-in-law who think I stay home too much, I don't socialize as much as I used to and they want to manage my life. I've asked my husband if he's bored (we're both tending to slow down with our outings anyway and like being home bodies). He said no, it's fine. So I'm not holding him back. My 21 yo daughter burns the candle at both ends, she's incredibly busy, carving out more than 24 hours in a day. Yes she's in college and involved in so many clubs, church groups, etc. She thinks I need to be busy too!

What I would strongly suggest is that you do what you think is best. Be your own advocate and not cave to peer pressure. I never thought I'd have peer pressure (or my daughter's nagging!) at age 53 but I have it. If I seek it out. The two pushy SIL's? I avoid them both, like the plague! They will never get it because they have normal GI tracts, they can eat anything they want and have one big poop a day. Oh, how that would be so nice to have again.....but this is the new me and for the most part, I've accepted my situation. Of course I need a bathroom nearby most of the time and have gone everywhere - the mall, grocery stores, even portalets. But you do what you have to to.

Just search deep inside, come up with a plan to do what is best for you. It's okay to skip outings that sound ideal on the surface - a hot air balloon ride - but are not in your best interests right now. You can say no! My immediate family enjoys primitive camping. I've said no for 9 years and now that we have a boat, it would be very convenient to do this. But I have gently told them - I am not going to poop behind a tree, 15 times a day! No in a park with flush toilets and I'll go. But if not, I'm staying home.

I do wish you well here but it's a fine line we all walk. And very, very carefully. This is why I no longer try to explain it to anyone who's "normal". I just take care of my needs, I try not apologize or go into details. And I whip out that lovely word - no! No thank you, that sounds like fun but I'll pass. Then I walk away, visit the bathroom (usually I need to anyway), or change the subject.


PS - like your prayer in public bathrooms, I take a deep breath, close my eyes, and pretend I am home, in my favorite bathroom, with no one needing to use the bathroom and my sweet dog at my feet. Does this work - well, sometimes just pretending does quiet my nerves and I feel better. But sometimes it doesn't work. about half the time I can trick my gut and it's odd contractions into calming down, by mentally putting my body where I want to be most of all - HOME! How I love that word....

Post Edited (Marsky) : 7/28/2008 8:44:06 AM (GMT-6)

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