So I posted this info over on the Crohn's board and some felt it might be IBS. So I'm cutting and pasting the synopsis and questions over here. Any words of wisdom? Anyone have the similar symptoms?
In early February my 2 sons came down with the "flu", vomiting and D. about a week later, Mom got the runs...and they have never left. I can control them with Pepto at every meal and severly limiting my diet. In the meantime, my dad signed himself into hospice and in Mid March passed away. (I'm a daddy's girl) During his first several weeks in hospice, while having D constantly, I started having panic attacks. PCP put me on Xanax, never did take a full dose only half of the smallest dose possible. I've never taken more than 3 one half doses (total of 1 and 1/2 regular dose) in a day --- the day we buried daddy. PCP says I've got a panic disorder and to go the mental health clinic. I don't "need" the xanax unless I get really stressed out and have an attack. In the meantime, I've lost 32 pounds and still have the runs. Finally found a Gastro doc, who would listen and had my 1st appt on the 19th of May.
Since then I've had an EGD with biopsies, colonoscopy, gallbladder sonogram, SBFT, stool tests and bloodwork. The EGD showed "red spots with white halos with no bleeding", erythematous gastropahty and said spots in the duodenum. He claims to have never seen those "spots" before, called in a 2nd doc who said he'd never seen them before. The colonoscopy shows colonic angioectasias. The terminal ileum was normal. The cbc and cmp were low normal in late February (PCP said because I was sick) and the celiac bloodwork was negative. Stool testing was negative. No results on the SBFT as of yet.
I have almost constant D, certain foods will go through and look almost identical as when I ate them. The fatigue is unbelievable, my knees, wrists and elbows will ache. The stomach ulcer meds, zantac, prevacid, etc. didn't help, and Immodium doesn't help
My follow up appt with the gastro is on June 10th and he has put me on Bentyl 2x a day. I am extremely medicine sensitive and my first dose of Bentyl was not pretty. I would go from hot to cold to awake to "zoning", lots of D, etc.
The stool testing was negative for cdiff, parasite, etc
The "pain" is usually below my rib cage on the right and then "spreads" or will start right at the tip of my breastbone. My stomach will visually roll and you can hear it gurgling (sorry wish I had better "words"). My D is mainly in the mornings, from the time my feet hit the floor until about noon.