I seem to be a medical mystery. I've seen four doctors and no one has a clue.
I have been complaining of a mild upper right sided pain for about 3 years. I had it checked out last year in March with an ultrasound and blood and urine tests. Everything came back normal so I stopped pursuing it. The pain would come and go and it wasn't that severe.
In October of 2008, I went to the ER with upper right sided pain and a fever. I had an elevated white blood cell count, and originally they thought I had appendicities. After a CT scan, I was told I had diverticulitis. Ever since then, and especially since November of 2008. I have been in HORRIBLE pain. The pain is mostly on my upper right abdomen. It starts to the right of and above my navel and wraps around to the side of my body. I am tender to the touch. I also have some left side pain, but it isn't as severe or as frequent as the right side pain.
I had a follow up CT scan in November when I was in severe pain--I was in more pain in November than I was when I was diagnosed with diverticulitis in October. The CT scan, blood, and urine were all clear. I asked the doctor, "Then why am I in so much pain?" He said, "I don't know," and discharged me with no means to control the pain.
I had a colonoscopy and upper endoscopy three weeks ago. I do have diverticulosis, but it is very superficial, unlikely to ever get infected, and it's in a different part of my colon than where I've been experiencing pain. I probably never had diverticulitis. There is nothing on my colonoscopy/endoscopy that would explain the pain. My liver enzymes are normal. If it were my appendix, it would have burst by now. I was also tested for celiac, IBD, and H Pylori, and all tests were negative.
I had a HIDA scan that showed no stones and my gallbladder functioning at 57%. It also said "suspicious for chronic inflammation of the gallbladder", but the surgeon I talked to about having it out said there's no way to test for it. I went to see another doctor for a second opinion, and he thinks that having my gallbladder out won't change my symptoms, but he has no suggestions on what to do to otherwise help me. I also have him looking at my CT films from October and November to see what is on the CT scan since I now know that it's not diverticulitis and I am having labs drawn to be tested for a handful of other rare disease that cause abdominal pain.
When I was on the table getting the scan, I had a little bit of right sided pain, but it wasn't bad. An hour after I got home from the HIDA scan, I thought my abdomen was going to explode because I was in so much pain.
Throughout all of this, I have also been experiencing severe neausea and light headedness with what I can only describe as a cross between a burp and a hiccup. When I burp, the nausea subsides. I've had this symptom for years, but it has gotten significantly worse now and it is really disrupting my life.
These symptoms wake me up at 3:00 am and generally persist throughout the day. I have noticed flare-ups when I eat something fatty. For example, I thought my abdomen was on fire the last time I ate salmon. But anything I consume can start this pain/nausea cycle, and it never really lets up. The pain can get so bad that I need narcotics.
My doctors think I'm a hypochondriac and won't give me anything for the pain. I have a bottle of Vicodin right now, but at some point it's going to run out and I need some answers.
My symptoms all scream gallbladder, though there are some things I an NOT experiencing, such as vomiting, diarrhea, or pain in my shoulder. The no diarrhea is probably the biggest red flag to my doctors.
Any ideas, suggestions, or advice? I'm really miserable.