jt80 - my heart just breaks for you and all you're struggling with. I am just a mom/wife struggling with IBS like symptoms, my life has been completely turned upside down for 10 years now. Not a therapist or trained in therapy but from gathering so much info from books from the library, to the internet, to talking to my doctor, I've discovered if I tackle my situation as simply and as positively as possible, I manage much better. If I were sitting across from you I would hold your hand and let you cry. I think you need a really, really good cry and someone to pat your hand. You need to hear that this will not be your life forever. You have no idea what's down the road. Your doctor could run one more test and determine what is causing your trouble. So don't give up. But might I suggest one thing above all? Make a list. List what you can change about
your situation and what you can't. Keep it simple. This is a list, not a diary. If you experience gas and it's keeping you from leaving home, make that a goal - how can I leave home if I have to pass gas. I develop a sudden cough or bump into a piece of furniture. Or suddenly drop my purse, to create a diversion. Silly habits like this mask what I'm going thru. And truth be told, I've noticed that most people I encounter have their own schedule on their minds, it's rare when they are quiet, focused on me and listening very closely. Heck, people almost run me down at stop signs, slam their grocery cart into mine, they're so completely absorbed in their old worlds, I am not even a blip on the radar screen. Honest! And you know what, if you let one rip and someone hears you, just lie and say what I do (but in my case it's not a lie) - oh I'm a colon cancer survivor, I've had a lot of my colon removed and this is what happens. Do the people say - oh honey, so sorry, no they gasp, distance themselves from me but I just smile.
Of course I am 54 and been thru a lot in my life. I now know that others do not notice that I am farting, burping, eating far too little in a restaurant compared to their entrees, have an urgent need to use the bathroom. For the most part, they always think I have a bladder problem. Ha! So again, I just let them think this. And if they think my troubles are stomach related? I let them again think this. At least they've stopped their busy lives for a moment to ask how I am! But I just no longer even bother trying to explain anything about
IBS. It's a LOST cause! Trust me.
I strongly feel that if you try to approach your situation from a completely different angle - for example, instead of asking why me, ask why not me, I'm strong, I can get thru this - you may see that a new attitude (resolve to manage IBS better) just might help you the most.
I know first hand that if I am extremely stressed out, I almost always have either dumping, or all out D.
Please know that my suggestions are only meant in the kindest way possible. Feel free to not take them but for what it's worth, please try just another approach with your situation. Getting this stressed out is not doing you any good.
Hang in there!
- Rectal Cancer 4/29/99, Stage I, no treatment necessary
(5 hour colon resection: 90% sigmoid removed, 15 inches of colon removed, gall bladder removed, temporary colostomy, reversed 8 weeks later)
- Chronic IBS/D symptoms, multiple bm's, on low residue diet
- Takes Colace 50 mg each evening
Post Edited (Marsky) : 7/11/2009 9:41:35 PM (GMT-6)