JT80, God I know exactly what you mean..except I have C without the C. I have air that traps my bowels and wont let anything move. I am so tired of being ill with this and so is my family and friends. I hate it when they ask how I am feeling so most of the time I lie but they can tell. I cant eat anything, everything is bad for me or makes me sick, bloated, in pain...and I dont know what the answer is. They are going to send me to another specialist 3 hrs away from my home, so I hope to get a appt soon. Right now I am in California at my daughters for a vacation for a little over a month.
It is so hard being away from home in you comfort zone....ya know what I mean? I have to plan my interventions as I call it...I have to do a enema every other day to relieve the gas that traps everything up so I can feel half way good, and not look like I am 9 months preggers... So I have to wait for everyone to be out of the house to comfortable enough to relax to do it. We are supposta go to Great America to ride the rides on Thursday, so I have to make sure everything is good on Wed night so I can go, so that means starving myself so I wont be swollen, sick, and possibly feel good enough to spend the whole day there.
When you are sick with this stuff it really gets me all worked up worrying about what will I beable to eat while I am there that wont make me sick. If I wake up the day we go and not feeling well I will have to pretend like I am good...so that stresses me to, plus staying the whole day, if I am sick, and in the heat there is a good chance that I will pass out from all the walking and sun.
I don't know if I would rather have the D then the C but I think that I would. I have not had any kind of D in years. Question? Have you been checked out for Celiac Spru? My son has constant D and he has that, if you havent then you might get tested.
But I am here to tell you that I feel your pain, and that there has got to be some doc with a answer for us somewhere....I do constant research on this and I have been calling people that I know have this to see if that might know something,,,plus calling every doc I can get my hands on to try and get good help or answers.
So many people suffer with this daily and most do not have the extreme cases like we do. So many people say to me Ya you have IBS but so does everyone and they just deal with it why cant you....HELLO,,,,,,they are not like me. But some dont understand and think your a complainer.....Hell no I am chronically ill...I have 2 good days a month if I am lucky.
So on a brighter note, would it help you if you started eating a lot of cheese and bread...good pluggers...but seriously.....keep you chin up, God loves you, I love you and want you to be well. I keep you in my prayers nightly as I do a lot of others,,,so it takes me a bit to get to sleep....lol
Keep your stress to a minimum, and a smile in your heart....and pray that tomorrow is better than today....