Jane's right jt80, it's easy to say we'll do what it takes to feel well, later in the day, tomorrow, etc. I did that. But realized hey I was missing out on feeling as well as I possibly could, day in, day out. So now I know what works for me (a combination of diet, reducing stress, meal portions and times I eat, meds, and basically having the guts - lol - to say no do social outings I just cannot comfortably partake in). I no longer even apologize for my situation.
I truly believe that I managed my situation much better once I accepted the fact that I was no longer "normal" - ie, one dump a day, eating anything I wanted without consequences.
Here's an example for you, right after my cancer I was introduced to a teacher's wife at my child's school. She had an emergency bowel resection due to her bowels being nicked while under for a simple GYN procedure. One simple procedure turned into her almost dying. But she survived a bowel resection, being reconnected, etc. No cancer, just major surgery. She suddenly found herself unable to eat the foods she used to be able to, without D, like me. So I was put in touch with this poor lady, hoping since I was a few months ahead of her, that she could relearn how to eat to manage IBS like symptoms.
Well, she wanted to keep eating whatever she used to and on top of that our city's very spicy chili! We live in OH, you've probably heard of Cincinnati style chili. I would suggest to her, please stop, don't eat it, maybe in 6 months or a year you can eat it, but not now (I'll never be able to eat it every again, but I didn't want to burst her bubble at this point). She would not stop eating it. I finally just had to say until you make the commitment to change your diet, you will continue to have D.
I've never heard from her again. I've run into her husband occasionally, he'll say her diet is all messed up. And sighs. I sigh too because if only she had changed her diet, that might have made her feel just 50% or even more - better.
I would gently suggest you start over jt80. Start at the beginning. Start with the food journal. Eat food in small portions, try a low residue diet for a while. I know you're on meds. Sometimes meds can give me D. They're a help in one way but a hindrance in another. See if your meds might be inadvertently giving you IBS symptoms too.
Seriously, pretend this is the first day of your IBS and take this back to ground zero/square one. Start fresh and see if a new, okay I have IBS, what can I do, to feel better attitude.
What you're doing isn't working. I only offer these suggestions in the kindest way possible.
- Rectal Cancer 4/29/99, Stage I, no treatment necessary
(5 hour colon resection: 90% sigmoid removed, 15 inches of colon removed, gall bladder removed, temporary colostomy, reversed 8 weeks later)
- Chronic IBS/D symptoms, multiple bm's, on low residue diet
- Takes Colace 50 mg each evening
Post Edited (Marsky) : 8/31/2009 3:25:53 PM (GMT-6)