things have been better!!! so far.

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Regular Member

Date Joined Sep 2007
Total Posts : 333
   Posted 9/6/2009 5:09 PM (GMT -7)   
Hi everyoneo hope you all are well I'm doing good since going off amitiza I'm able to eat without any interuptions during or after I'm so happy!!!! Usually eating as much as I've been eating I'd start feeling the creaping up of the dreaded D lol I still cant say that word lol I guess I've gone through so much of experiencing it I hate the true word lol.Wow sorry that was a long run on sentence lol,but I'm so happy I feel like I've been free from something that's been keeping me captive at times I've felt.Not saying I'll never experience it again but I feel it wont be coming back for a good while I could only hope.Since amitiza was helping me have bms now without it it takes more time for me to have my start of the day bms.There is not much urgency still having excessive gas in the morning at times but not as much during the day.So now I wonder could I try to go back on Align the probiotic and see if that will help with limiting the excessive gas.Before that I wait till my GI appointment next month and just talk somethings over,my hope is back and stronger then ever that things are on thier way to improveing more.This is the battle of my life and I will come on the other side victorious with God grace and love I'll be back to my old self .Anything is possible with God I feel all my years of praying are slowly being answered.As always sending you all my love and warm and good thoughts take care everyone. :-)

Regular Member

Date Joined May 2003
Total Posts : 81
   Posted 9/6/2009 8:41 PM (GMT -7)   
I'm glad you are doing better, JT80.  Your experience with that drug sounds similar to what some people experienced with Zelnorm.  Hopefully, you can get your digestive system under control naturally. 
Peppermint pills are helpful for gas.  Some are better than others.  I have found that the peppermint from the helpforibs site is especially good.
Hope you continue to feel better!
Diagnosed with: seizure disorder in 1962; seizure-free since 1969, anorexia from 1968-1969; IBS-D in 1996, Mild depression, anxiety, & OCD in 2000, (probably had since childhood); PMDD in 2001, Dysfunctional tear syndrome in 2009; Meds: Phenobarbitol, Paxil, Allegra; Supplements: Citrucel tablets; many vitamins, minerals & herbs - too many to list here

Veteran Member

Date Joined Jul 2007
Total Posts : 1956
   Posted 9/6/2009 9:30 PM (GMT -7)   
Good to hear that jt80. Sounds as if you are re-examining everything you were doing (meds, diet). Questioning, etc. This is good, keep it up. One of your sentences jumped out at me - you said this is the battle of your life.

Yes I'm sure it feels like a battle but facing it also is helpful too. I honestly don't think I handled my post-colon resection/cancer which induced IBS/D phase as well as when I finally had a serious pep talk with myself. I made the commitment to myself to make this situation the best that it could be. Because I did want to get out there and have some sort of life and not be stuck at home. I do think I've been able to do both - feel as well as I can but also to venture out and leave home at times. One of the things I do the most is cut back on food. Only for short periods of time but I find that this helps me the most of all. I joke - no input, no output.

Lately this trick of mine has really put thru the test - my mom has been in the hospital for 3 weeks, (head trauma from a fall, she lost her speech and has been in rehab ever since). Nothing in my life right now has been normal. Once she is discharged I know I'll be needed to help. Again, how this is going to all work out well I don't know. But I do know I'm stocking up on turkey subs and packing my own food. Bananas too - LOL. First week I was trying to eat hospital cafeteria food with everyone else but paid for it. Then I started bringing bananas with me and had one for lunch each day. That was all and you know what, this one mid-day banana seemed to keep me almost normal (formed bms). And as my one sister-in-law said - we're in a hospital, there are bathrooms everywhere here! True, there they were, one down every hallway it seemed like. But this medical crisis sure has tested my IBS routine.

You're going to figure all of this out. I just know you are. I have this intuition and to use a bad pun, a feeling in my gut you're going to find your answers soon.

Take care.....good night.
- Rectal Cancer 4/29/99, Stage I, no treatment necessary
(5 hour colon resection: 90% sigmoid removed, 15 inches of colon removed, gall bladder removed, temporary colostomy, reversed 8 weeks later)
- Chronic IBS/D symptoms, multiple bm's, on low residue diet
- Takes Colace 50 mg each evening

Regular Member

Date Joined Sep 2007
Total Posts : 333
   Posted 9/7/2009 9:29 AM (GMT -7)   
Thanks guys I'm happy that I'm feeling better but I'm kind of dealing with just  a little bit of constipation.I looked at another medication for chronic constipation that I could take but that had the same bad side effects as amitiza.I do not want to go through all that mess on a new med I'll just try to have bms the natural way even it takes me some time.Lol but I find that my body takes it's sweet time to let them all out when I was on the amitiza it would not take that long to start feeling that I need to go.Amitiza helped them along I'm wondering if taking colace will help much? I want to try the most natural ways possible without any bad medications.Drinking bennefiber is helping some I just want to feel I've evacuated enough bms to head out for the day not having to do it out in public.
Guys I have a question do any of you experience gas like when you've waken?The night before not experiencing that much gas after eating but sleeping through the night things are fine but when the morning comes I have all this gas that I need to pass which sometimes wakes me up too.I hate that not sure why this happens I think when my stool makes it to my colon that's when it starts I guess.Maybe I need to take gas-x before I go to sleep to help in reducing the amount that I get.But with eating less I cant do that I've been depriving myself for awhile now of three square meals a day without that much problems but now I feel my body is telling me I need to eat more.Just eating two meals a day and snacks in between is not enough got to eat more,I found eating the rest of my dinner last night which was a nice plate and having some snacks afterward.Later in bed that night I woke up with hunger had to eat again to go back to sleep so I got to eat breakfast,lunch and dinner with snacks.
But anyways guys hope you all have a good day and my thoughts and prayers are with you Marsky sending all my love take care. :-)

Post Edited (jt80) : 9/7/2009 10:32:05 AM (GMT-6)

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