Is this IBS or something else?

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New Member

Date Joined Dec 2006
Total Posts : 4
   Posted 10/17/2009 6:25 PM (GMT -7)   
I posted a few days ago ago another forum about not being able to sleep because of needing a bowel movement. It's dawned on me that the not sleeping is just a symptom of the increased bowel movements which is the real issue.

I have been diagnosed with IBS for years BTW

In the last few weeks my bowel movements have increased quite a lot to 3-5 BMs every other day, and mostly at night - they have also been looser on the most part. On those nights I may go as many as 5 times between 7pm and 4am and like tonight, the consistency has gone looser with each bowel movement, though never going as far as watery - they are still solid, just a lot looser. I have also been feeling a bit nauseas in the last few days, though only during the times that I have 'needed' the bowel movements.

There has been blood a couple of times, though this has not really been on the stools themselves but more on the toilet paper and has been when I've had lots of bowel movements which I've felt hurting the anus entrance.

Various trips to the docs have been fruitless and I've started to worry myself sick about other things like colon cancer.

If these sounds familiar to anyone or you can shed any light from knowledge or hearing other people's experiences I'd be very appreciative of any input.

Veteran Member

Date Joined Sep 2009
Total Posts : 1176
   Posted 10/18/2009 8:15 AM (GMT -7)   
Hi Steve,

Have you ever been tested for celiac disease? I was also told for decades that I had IBS....turned out to be celiac. I was finally diagnosed at the age of 52, but I've probably had it most of my life.

The really unfortunate thing about not being diagnosed properly is that the only treatment for celiac is the gluten free diet. And untreated celiac disease can lead to other autoimmune diseases:

Which may explain why I now have so many darn AI diseases!! :(

You may want to ask your doctor about the possibility of celiac disease. If you do get tested and the tests come back negative (there are frequent false negatives in both the blood work and biopsies for celiac), then you can test yourself by going gluten free for a week or two then going back on gluten. If you feel better on the gluten free diet and worse when you go back to gluten, then you know!

Good luck!!
Autoimmune hepatitis, Hashimoto's thyroiditis, fibromyalgia, rheumatoid arthritis, celiac disease, asthma, psoriasis, Raynaud's syndrome, hypertension, osteopenia, sleep apnea, restless leg syndrome, GERD. Possible lupus and/or polymyositis - diagnoses pending.

Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Atenolol, Cozaar, Mirapex, Zyrtec, Fosamax, Albuterol, Prilosec, CPAP

Post Edited (nasalady) : 10/18/2009 10:00:18 AM (GMT-6)

New Member

Date Joined Dec 2006
Total Posts : 4
   Posted 10/24/2009 12:23 AM (GMT -7)   
Thanks JoAnn, I've never been tested for celiac disease - I'll look into getting that done. Must admit I've heard people talk about gluten free diets but never looked into them all that mich - food for thought, pardon the pun!

Veteran Member

Date Joined Jul 2004
Total Posts : 1293
   Posted 10/24/2009 11:52 AM (GMT -7)   
Steve, do these bowel movements actually wake you from sleep, because that would be a 'red Flag" for IBS?

Have you had a colonoscopy.

IBS won't turn to cancer and certain blood tests can help rule that out as well as certain stool tests, that test for inflamation. Have you had blood and stool work done? Was it a GI doctor that diagnosed you?
I am not a doctor. All information I present is for educational purposes only and should not be subsituted for the advise of a qualified health care provider.

Please make sure you have your symptoms diagnosed by a medical practitioner or a doctor.

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