Has anyone tried Lotronex?

80sChick

Veteran Member

Joined : Oct 2009

Posts : 1054

Posted 11/7/2009 6:11 PM (GMT -7)

Hi everyone,

I've had Crohn's/Ulcerative Colitis for 10 years now, and recently my GI just diagnosed me with severe IBS-D as well. He is going to put me on Lotronex next week and I am just wondering if anyone has tried it and how it worked. I looked up some information on it and it all seems to be great, except it says I shouldn't take it since I have Crohn's/UC. I am nervous, tho I trust my doctor's decision to put me on it. Anyone have any thoughts?

Thanks in advance!

Stephanie

28 Year old Female

Diagnosed with Crohn's Colitis March 2000

Recent possible diagnosis of IBS-D

Tried Meds: Asacol, Remicade, 6mp, Humira, Xifaxan, Apriso, Rowasa Enemas.

Currently on: 40mg Prednisone, 100mg Imuran, Align, Prenatal Vitamin, Vitamin B 12 Complex, Vitamin D/Calcium, Flomax (for urinary retention).

Normal

Regular Member

Joined : Mar 2008

Posts : 263

Posted 11/8/2009 5:11 PM (GMT -7)

I tried Lotronex 2 years ago and it did nothing for me. I was also thinking I had found the fix. My Dr. at a very well known clinic said it was the designer drug for IBS-D. Have you read the risk? I had to sign a release before I took it. My family did not want me to take the cahnce but my 2 Drs. said QOUTE You do not have a choice if you want to lead a normal life and continue to work. I think they talked because they both told me that. I started with some bad side effects after a couple of months so they took me off of it. I am here to tell you I do NOT let Drs. BULLY me into meds anymore. I am on Savella now and it is doing wonders for my IBS-D and Fibro. It worries me because it is new but does not have bad side effects. So think about it and be sure before you try it. I thought the way the Drs. talked it almost always worked but as I said it did absolutely nothing for me.

80sChick

Veteran Member

Joined : Oct 2009

Posts : 1054

Posted 11/8/2009 6:15 PM (GMT -7)

What kind of bad side effects did you notice?

Don't worry; I don't feel bullied into taking it at all...I know everything is my choice. That's why I ask for all the info from you guys!

28 Year old Female

Diagnosed with Crohn's Colitis March 2000

Recent possible diagnosis of IBS-D

Tried Meds: Asacol, Remicade, 6mp, Humira, Xifaxan, Apriso, Rowasa Enemas.

Currently on: 40mg Prednisone, 100mg Imuran, Align, Prenatal Vitamin, Vitamin B 12 Complex, Vitamin D/Calcium, Flomax (for urinary retention).

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Has anyone tried Lotronex?

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