Well it's my firm belief that some of these colon surgeons and Gastro docs have absolutely no idea what we all go thru. None. After my ostomy reversal my surgeon's partner told me to eat anything I wanted, possibly 4 - 6 small meals a day, not 3, and maybe to avoid spicy foods. That's it. And oh "take Immodium, enjoy life!".......
I listened to this advice and thought, okay I can do this. I will go back to normal.
Ha! I haven't had normal bowel habits since prior to my cancer and colon resection.
I eventually read about a low residue diet and went on it. Keeping a food journal. Had to see my surgeon for a check up and mentioned the diet I went on. At first he was taken back (I didn't even mention the foolish advice his partner gave me) but after a minute or two he told me a LRD make complete and total sense.
It was as if a light bulb went on.
I also want to mention I am a mother and I would give my daughters the BRAT diet after an intestinal infection. Ask any mother out there if they would feed their child blueberries or whole wheat toast after D and they'll tell you no way!
So I just told him how raw I was on the inside and how this very plain diet calmed and quieted everything down. I could actually feel the swelling going down.
He finally agreed that I should be on this diet and saw no harm in it.
Now I can eat more fruits and veggies. But fresh berries are only consumed in moderation. Never a bowlful of blueberries! I might as well camp out in the bathroom if I ate that many!
So I do think sometimes these doctors trust what they've been told to advise us. But when you dumb it down for them and give them simple, basic examples - hey doc, I'm pooping this many times a day, hey doc I am a real mess, I can't even drive my kids to school - they won't understand how intrusive IBS is for us. How it affects our day to day lives.
I wouldn't wish this on our doctors, 24/7. But if they could walk one day in our shoes, then maybe they'd be more understanding with us.
- Rectal Cancer 4/29/99, Stage I, no treatment necessary
(5 hour colon resection: 90% sigmoid removed, 15 inches of colon removed, gall bladder removed, temporary colostomy, reversed 8 weeks later)
- Chronic IBS/D symptoms, multiple bm's, on low residue diet
- Takes Colace 50 mg each evening