New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Regular Member

Date Joined Apr 2009
Total Posts : 47
   Posted 11/22/2009 8:23 AM (GMT -7)   
Just some advice please?
I saw 5th dr. the other day. He was a jerk. Will never go to him again. He said I had severe IBS. My md things I have chrons? I test very high for saccromyces cervasie IGG and IGA. Had colonoscopy 4 yrs ago. CT ect show no lesions ect. So know one will give me diagnosis of chrons. This has slowly progressed over 3 and 1/2 yrs. I went from 136 pds to now 107 pds. I cant eat anything but chicken, peanutbutter crackers, canned peas, green beans, some potatoes.
I have watched what hurts me. I have bloating, gas, and now having problems with constipation. But I think more due to phenegren. I have also became lactose intolerant the last year. Caffiene, red meat, sauces,, spices, fried, greasy ect. salad are a NO NO!! Severe pain. They gave me align to use. Havent tried it. Heard bad things. 1 day of hycosamine but bad, bad side effects. This has totally destroyed my life. I go to work and home. I raise 3 teens on my own, and I really dont have a life. I heard probiotics are good. But I really want to know which are the best to try. Money is tight of course. So any advice Is well needed. I dont know at this point if I have Chrons? IBS? what? But I do know something is wrong and I cant get answers!!! My body is slowly not being able to keep up with really not eating.
Please any HELP?

Veteran Member

Date Joined Jul 2006
Total Posts : 1201
   Posted 11/23/2009 6:41 AM (GMT -7)   

I'm not a doctor, so I don't know much about IgG and IgA. But, from what I've read, those could be characteristics of someone having CD, or celiac disease(high levels if IgG). I would stop eating any processed foods, such as the peanut butter crackers (wheat and yeast in those which may not be helping you) and try to stick with foods that your body needs to heal...whole, natural foods that you are able to tolerate. Beans may cause gas. Not sure if that means green beans, as well. Definitely look into reputable probiotics. One size does not fit all, however. I had to experiment with a few before I found one that improved my symptoms (Primadophilus Reuteri by Nature's Way).

Were you ever on antibiotics? When was your last colonoscopy? My IBS symptoms progressed to UC within a few years. My first scope showed NOTHING and they told me it was just IBS, so keep an eye on those symptoms.

New Member

Date Joined Nov 2009
Total Posts : 2
   Posted 11/23/2009 4:50 PM (GMT -7)   
Dear NebraskaGirl,

I Do understand your dilemma. Make a list of everything you ingest for 1 week. EVERYTHING. Bring the list to your MD appointment and be sure to abstain from any type of alcohol or carbonated beverage. I know you know already to avoid spicy, red meats and most likely dairy products. You may have an underlying food allergy that has not yet been diagnosed.

Are you able to take any form of pain medicine. There are many without the nauseating effects of codeine's based drugs. Toradol, ultram, etc. Please ask. Stress is the biggest factor in IBS and YES, environment.
Are you opacing yourself. Taking time to meditate to help yourself relax? Please contact me if you need to talk. I lived with IBS for 15 years, then had a sub-total colectomy - (95% of my large intestine is gone due to disease of paralyzed intestine)

I may be of some help.

SubTC Girl
My best to you.

Regular Member

Date Joined Apr 2009
Total Posts : 47
   Posted 11/24/2009 7:13 PM (GMT -7)   
Thank you for your input and I didnt mean to offend any Dr's. LOL. I work for one and have for more then 20yrs. There are some that have beyond the heart of gold and some who just dont have their heart in it anymore. I had a colonoscopy and endo 4 yrs ago with neg biopsy's done. At that time I had no food in take. The only finding was evidence of H-pyl ori cannulated? Blood specs covering the stomach(they couldnt find active bleeding) and peticie(cant spell it) of the fundus of the stomach. They were unsure at that point. That was almost 4 years ago. Off and on that year, inflammation levels showed, some odd blood work ect. No answers.
Slowly over these years I have been checked for stool, celiacs, defeciency of vitamins, sm. bowel follow through, gastric emptying study. ect. The only thing in the last year has been ct of the abdomen. I have no clue what has happend to my body put it rules it. I know alot of dr.s dont belive in the IGG and IGA blood test for cd/uc ect but mine are triple fold and have been done twice this year 6 months apart. I know things can change in the body in a year. I self help so I can go on until I can find a GI who will listen to me. I can seem to hold on to weight. I stayed 115 for about 5 months, now 107pds. I did this sunday just start "GOOD BELLY JUiCE" Probiotic. After almost 4 yrs no answers and still sick it just takes a tole on you mental and physically. But any advice I greatly accept. This sight has been a life safer for me.. And to the dr. I hope I didnt offend you. Yes I know there's good Dr's and bad ones. But one that take time to answer on this site tells me alot......

Veteran Member

Date Joined Jul 2007
Total Posts : 1956
   Posted 11/24/2009 9:16 PM (GMT -7)   
Well it's my firm belief that some of these colon surgeons and Gastro docs have absolutely no idea what we all go thru. None. After my ostomy reversal my surgeon's partner told me to eat anything I wanted, possibly 4 - 6 small meals a day, not 3, and maybe to avoid spicy foods. That's it. And oh "take Immodium, enjoy life!".......

I listened to this advice and thought, okay I can do this. I will go back to normal.

Ha! I haven't had normal bowel habits since prior to my cancer and colon resection.

I eventually read about a low residue diet and went on it. Keeping a food journal. Had to see my surgeon for a check up and mentioned the diet I went on. At first he was taken back (I didn't even mention the foolish advice his partner gave me) but after a minute or two he told me a LRD make complete and total sense.

It was as if a light bulb went on.

I also want to mention I am a mother and I would give my daughters the BRAT diet after an intestinal infection. Ask any mother out there if they would feed their child blueberries or whole wheat toast after D and they'll tell you no way!

So I just told him how raw I was on the inside and how this very plain diet calmed and quieted everything down. I could actually feel the swelling going down.

He finally agreed that I should be on this diet and saw no harm in it.

Now I can eat more fruits and veggies. But fresh berries are only consumed in moderation. Never a bowlful of blueberries! I might as well camp out in the bathroom if I ate that many!

So I do think sometimes these doctors trust what they've been told to advise us. But when you dumb it down for them and give them simple, basic examples - hey doc, I'm pooping this many times a day, hey doc I am a real mess, I can't even drive my kids to school - they won't understand how intrusive IBS is for us. How it affects our day to day lives.

I wouldn't wish this on our doctors, 24/7. But if they could walk one day in our shoes, then maybe they'd be more understanding with us.
- Rectal Cancer 4/29/99, Stage I, no treatment necessary
(5 hour colon resection: 90% sigmoid removed, 15 inches of colon removed, gall bladder removed, temporary colostomy, reversed 8 weeks later)
- Chronic IBS/D symptoms, multiple bm's, on low residue diet
- Takes Colace 50 mg each evening

Regular Member

Date Joined Nov 2009
Total Posts : 28
   Posted 11/25/2009 3:12 AM (GMT -7)   
No offence taken! I know there's good and bad in all, but just remember we are not all bad!
New Topic Post Reply Printable Version
Forum Information
Currently it is Saturday, December 16, 2017 11:31 PM (GMT -7)
There are a total of 2,906,369 posts in 318,948 threads.
View Active Threads

Who's Online
This forum has 158284 registered members. Please welcome our newest member, Mindy829.
285 Guest(s), 6 Registered Member(s) are currently online.  Details
Jaiki, MDNative, tdnjam, 1000Daisies, The Dude Abides, Girlie