<FONT color=#008000>im very sorry to hear what youre having to deal with. i am 27 and had to suffer with extreme pain/bloating for a very long time due to my severely chronic constipation. i wish i could tell you that i led a happy life and knew all the secrets to ignoring the problem but thats just not the case for me. i can tell you that the best thing to do is keep on your doctor(s) to make you well. theres no reason that anyone should have to be living in misery due to this issue. i was ignored for a long time but i finally found a specialist who was willing to really listen and get me the help i needed. it was a looooong process. there was tons of testing, therapy, and medicine along the way. it wasnt cheap or easy. but you have to keep pushing to get well. and i promise you it will be worth it. i had a total colectomy in april and since ive recovered i have been living the best life ever! i had no idea how much pain i was really in until it all went away. you live with it for so long that you just get used to it, but you shouldnt have to live with it. im not saying you should have your colon removed, but my point is you need to find someone who can figure out the right treatment you need. if youre not getting anywhere with one doctor then go to another one. youre still young, and i promise youll be able to get back into shape. you just have to be feeling well enough to be able to do it. now that im not hurting all the time i never sit still. its so nice to be able to do anything i want- even if its just running to the grocery store- without being in terrible pain. just try not to give up. i know where youre coming from and its very frustrating and extremely emotionally draining. i wanted to call it quits so many times and just accept that this is the way my life is and its not worth fighting anymore. but IT IS WORTH FIGHTING FOR! good luck :)
This is Strain30, I had to register again because I had forgot my username and password. I just wanted to thank you for your reply. My situation has progressively gotten worse. Now my GI specialist had refer me to another specialist because he has done all he can do, he stated that he doesn't specialize in "Pelvic Floor Dysynergy" That was back in Sept. 28 2010, which after that conversation he told me he would have his secretary fax my info to a new specialist. Well as of Nov 12th the new specialist never got my paperwork from him. OVER 2 MONTHS! I had to call them again Nov 16 and today the 17th just to make sure they finally faxed it over. But now that the new specialist has my paper work the appointment booker told me that he might or might not see me, and he is booked a year and a half out!.... I told her this morning that she will be hearing from me everyday until I get an appointment. It is so out of my character to be pushy, but if all of this has taught me anything, you are absolutely right, I need to be the one to follow through because I have had this pain for 30 years now! I am so over it, I have done all the testings, and I am still on this crazy laxative regiment that sucks. I am in pain 24/7. I always feel sick, and it is getting worse. This morning I had my second to last appt with my Physical therapist, because insurance will not cover anymore. She had already put in for an extension, but today she told me that she would not do another extension, because she feels I need more help than she can give me... due to me seeing her since May, June 2010 and no improvement. and in my last post I had put how the machine was acting freaky. well the following appointment, my therapist said that she was concerned so she hooked the machine up to herself and it was fine. she indicated to me that the "freakiness" was just my over acting muscles. So now it is Nov 17th and I actually order a home biofeedback machine, and my therapist had it this morning in her office. well, I was in such pain that I literally broke down... while she was showing me how to use it. it has just been a tough day. I now have to fight with the insurance company to pay for the machine... and then... what if it's not just PFD? This is just so hard to deal with. I am trying to take just one day at a time but it is very difficult with the constant reminder of pain, bloating, and my weight gain has just gotten worse. Have you or anyone else have weight gain too? My energy level is so slow, I just want to go to sleep. I am sorry that I am being so negative... I never used to be so sad...I just have a lot on my plate. I have to keep positive. Again, just knowing that someone else out there has this too makes such a difference.
Thank you for sharing