does anyone have dumping syndrome?

i have dumping syndrome so bad. i cant go to work because i might go to the bathroom in my pants and would have to go home and take a shower and change cloths. i cant even take my kids to the park because it just happens when ever. its not just when i eat its all the time. i have had several accidents during the night. on my bad days i have wear depends because i cant get to the bathroom in time or cant hold it. i also wear them at bed time. not feeling very sexy in those. i am glad my husband stands behind me and never saids anything bad. anyone else have this? i also go up30 times a day. most days are 5-7 and some 12-15 times a day. tried diets but i just cant get it to stop. the pain is terrible also. i have vesoval episodes also. it scares me.

While I've not been diagnosed with dumping syndrome but rather living/existing without my lower colon and sigmoid area, no ostomy, I experience what could be described as dumping. I can get into a phase where the bm's occur for several hours, and there's no stopping them. But usually in my case I can trace it back to something I had eaten or that I had eaten a larger meal than my touchy gut is used to now. Something precipitates the dumping in my situation. The wrong foods or way too much food. So this is how I manage my situation. But it doesn't sound like what I do will help you "please help me".

I also find that when the dumping starts it's best to allow it to happen. Sure I could bombard my system with up to 12 imodium pills but then I almost get to the point of constipation the next day.

But I work part time and my kids are grown so I have the freedom (usually) to cancel a social outing or call in sick if the dumping starts.

That said I have an ex-SIL who is a nurse and works in a busy hospital. She has told me that over half of her colleagues have dumping syndrome. Even doctors. She explained it's just a result of their extremely busy schedules and work pace.

Do you happen to have a very stressful job?

For me if I come under a lot of added stress, I have to pull back on eating. If I continue eating even small meals, my gut goes into overdrive and I have the onslaught of repeated, almost dumping like bm's start.

For example last Fall my mom had emergency brain surgery, from a fall. She's 85. She was in the hospital for 4 weeks, my brothers and I didn't know if she'd return to her beautiful apartment and live independently again or not (her wish). Long story short, we searched for top notch assisted living facilities and nursing homes, with rehab. But she ended up making a full recovery and is back home, so happy. But my gut thru that traumatic time - a real mess. I was eating bananas, yogurt and white rice for days on end. Just to keep the bm's down. It worked. But what a time that was!

The next time you have a dumping episode, look back at the previous 24 hour time period. Were you under a lot of added stress? Did you eat a food that irritates your system? Did you perhaps consume too much at one meal time (enjoying a buffet type meal)?

I can usually pinpoint where I went wrong after an episode.

Some here who have their gall bladders removed find relief from taking chewables Caltrate pills with vitamin D. Perform a search, you'll find many past topics and posts. I believe you need to experience the yellow bile type bm's to receive the most benefit from taking Caltrate. There are a few prescriptions you can try as well, that are usually prescribed for high collesterol but have a side benefit to what you're possibly experiencing (bulking the stool, ending the repeated bm's or D). One is Wellchol? And the other is Questran? Again, perform searches for both medications, see if your symptoms might be managed better from either of these medications and if so, bring these questions to your doctor.

Hi, we have turned to a natural health care dr for our daughter who suffers from Colitis and drink a very good juice that may just help your situation. I truely think diet, excersise any stress relief things you can do, maybe google natural health care providers in your neighborhood. We hope to eventually get her back to "good health" drug free.

WHen I was having diarrhea a lot my doctor prescribed wellchol. However, when I quit taking zoloft due to the horrible reflux it gave me, the diarrhea also stopped! lol... So, I never had to take the wellchol. Sometimes, I feel like we have to come up with that right magic combination but it can be like winning the lottery with one in a million odds! Some days are better than other, that's for sure. Today, my stomach feels good but I am home with lots of fatigue and aches from fibromyalgia. I love it!!! Sigh.......

I re-read my replies above and want to add one more thing I've tried since May - a probiotic. I still eat the organic yogurt but I realize now I would need a gallon of it each day to equal what is in pill form. I discovered Renew Life, Critical Care for Colon, 80 Billion count. A bottle of #30 cost around $47 at my local health food store. This store also offers coupons in my community's monthly coupon magazine. When I remember to look for a coupon, I can save as much as $5. Why is this pill so important? Well I've just noticed my gut is much quieter, leveled out, almost feels normal except for the multiple bm's. Sure I can still have a dumping day, and my stomach will swell, the bm's come one after another but not as often as before I went on this probiotic. If you're interested, they offer lower billion counts, which are cheaper, at 30 or 50. I believe there is one at 15 but that's hardly anything. I have discovered my gut responds well to the 80 billion count. You find it in the chilled section of your health food store. Near other pill form probiotics.

I have an appt for my gastro dr next week I've already sent him the info on dumping syndrome and a letter asking him if I may have it.

Medication to relieve symptons of Dumping Syndrome.

To anyone who is suffering from early and late dumping syndrome. I have had late and early dumping syndrome for the last three years after a fundoplication operation in1997. I kept on getting dizzy in the morning and collapsing, finishing up in ambulances, hospitals etc, MRI's , Cat scans , X-rays you name it to no avail. Seeing I am in my sixties, they all thought I had heart problems eg a heart attack. Lots of doctors and specialists tried all sorts of blood pressure medications etc to no avail. Anyway late in 2009 a very thorough specialist finally diagnosed me with early and late dumping syndrome!
I was advised to change my diet eg low car/high protein, not drinking with food, regular small meals in the morning eg a Ryvita cracker with cheese every hour, a coke mid morning etc----these things did improve my condition quite considerably. But I still had lots of days where I could feel it lingering in the background and still collapsed several times--all up 30 times in 3 years!

Anyway earlier this year I got a bad cold and thought I'll have a look to see if I still have some cold and flu tablets, I found an old packet original of
Sudafed sinus + allergy & pain relief 30mg and started taking them even though I am on two blood pressure medications. Well I can tell you my dumping syndrome symptons disappeared totally by the next day!!

When my cold finished I stopped taking Sudafed 30mg and the Dumping syndrome symptons came back again. Anyway to cut a long story short, a few weeks later I collapsed again, went to my specialist and told him about the Sudafed and he told me that I had found the medication they used to give to
dumping syndrome sufferers in the US. Due to the controversies about Sudafed original containing pseudoephedrine they took it of the market in the US.

In Australia however it can be bought in small packets at pharmacies upon drivers license identification.

The doctor however could give me a prescription for Sudafed, I now take only a half tablet with half a glass of water just before breakfast and I have no more dumping syndrome problems!!!!! For genuine proven medical reasons a script will be provided. I still stck to my diet though and no sweets at night after say 8pm, I found that one crucial!

When my current packet of Sudafed 30mg is finished I am switching to a different prescription to Demazin which also contains pseudoephedrine but does not contain paracetamol like Sudafed but is basically the same medication.

Do not take them at night especially the 60mg version as the pseudoephedrine will keep you awake.

Hope this helps all dumping syndrome sufferers and even though I am on high blood pressure medications (which I now take after lunch) and Sudafed or Demazin does raise my blood pressure somewhat I feel better than I have in years!

Regards,

Mike

Australia

Long long time since anyone posted, but thought I would share my story incase it helps anyone.
I have been diagnosed with dumping syndrome but am apparently very unusual in the fact I have not had any stomach or other causative surgery. I have both rapid and delayed. The rapid being the worst which includes shaking, sweating, nausea, cramping and explosive diarrhoea.
My life totally changed after I got diagnosed.......after 24 years of it I am now in control. My gastroenterologist had me work with a dietician and the plan is simple. Include protein with every meal and DONT eat and drink at the same time. I MUST leave 30 minutes clear after drinking before I eat and 30 minutes clear after I stop eating before I drink. I was also advised to lay down, if possible, for 20 mins after dinner. Following this I have zero episodes now......big change from 5-7 a day! The 30 minute rule is the main thing that helps. Watch out for food which is inbetween like soup, yogurt etc and treat ice cream as a liquid.

Post Edited (Kasmac) : 8/3/2018 7:54:49 PM (GMT-6)