TheBigA, I noticed LOMOTIL as one of your meds, does this not work for you. I take it in the morning and it helps all day so I don't have to run to the washroom when I'm out with my 3kids. I know exactly how you feel, before I started taking LOMOTIL I use to take my mom with me whenever I had to take the kids to an appointment. The pediatrician office was the worst because you had to ask for the washroom key and then run down the hall to get to it, it always made me panic when I had to go there. Occaisionally I have taken XANAX for the anxiety and it helps to calm my stomache and mind.
Diagnosed with Ulcerative Colitis 1995
Salofalk Tablets 2pills -3xday
cortifoam nightly when needed
hycort enemas nightly when flaring/vitamin E enemas
Bio-K Probiotic (evening) + Renew Life - ultimate flora critical care probiotic (morning)
cut out all wheat and flour