IBS diagnosis doctors aren't helping

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New Member

Date Joined Mar 2010
Total Posts : 1
   Posted 3/25/2010 8:52 PM (GMT -7)   
I've been having diarrhea, constipation, intense abdominal pain, nausea, vomiting, weight-loss and appetite loss off and on for the past year and a half. So far I have only gotten a diagnosis for IBS and now take nearly 20 pills a day. I have had a colonoscopy, endoscopy, barium follow through and a lot of blood work done. I have recently been getting worse, have had excruciating pain for nearly 2 weeks, feel constantly nauseous, am taking a steady dose of Ultram and yet my doc's say it may be 3 MONTHS before I can get in to see a GI specialist!!!! What else can or should I be doing to make things more bearable??

Regular Member

Date Joined Aug 2008
Total Posts : 268
   Posted 3/26/2010 6:39 AM (GMT -7)   
I am going through the same thing. Though I see a GI doctor, but they can not do anything for me since I have been on every medication, powders and nothing works. I had a total colectomy back in 2008, did okay for a year, and then had problems. I had a total colectomy for slow transit constipation. Though due to food intolerance was slow recovery, but avoided those foods and did well for a year. All of the sudden, I started getting diarrhea non-stop, severe stomach issues, abdominal pain especially after eating and/or during bowel movement, and other issues. Had an excellent appetite through that until December, when my appetite all of the sudden went away. though i have gotten my appetite back, but the symptoms are a lot worse. More I eat(or try) the more diarrhea, pain, and frequency and output I have. I had an ileoscopy(I do not have a colon, so the checked my small intestine), and an endoscopy. My primary care doctor did a blood test 2 weeks ago to find that my Bilirubin (liver) was high, but when I told the G.I. doctor the other day, he just said he'll check it again and nothing is being done. I am getting a second opinion and going to Boston to see a G.I. specialist there (I live in Rhode Island). This summer I saw the colon surgeon who did my surgery and said that this diarrhea is not normal for that surgery. Though i was supposed to only go up to 3-4 times day, as opposed to the normal 2-3, but my stools should have firmed and not go so much. Well, good luck with everything.

Asperger's Syndrome
Rectal prolapse surgery Dec. 2006
total colectomy with ileo-rectal anamastosis: Aug 7, 2008
Numerous food intolerance (gluten,lactose,msg,etc)
Persistent/chronic Lyme Disease: March 2010(org dx in Sept 2009, but meds unsuccessful)

New Member

Date Joined Mar 2010
Total Posts : 5
   Posted 3/31/2010 5:21 AM (GMT -7)   
Have you had a hydrogen breath test?

Veteran Member

Date Joined May 2009
Total Posts : 833
   Posted 4/5/2010 4:54 PM (GMT -7)   
    I am so sad to hear of your difficulties, you poor thing you would think the worst was behind you.  Are you a soda drinker, like Coke?  My son quit drinking Coke and his runs went away...all the artificial sweetners are bad for you.  I am not trying to minimize your problem at all but it was just a thought that popped into my head.
I just had a total colectomy in Feb 19,10.  My colon just completely quit working.  I hope that you get answers and some help soon.  I feel so bad for you, I will be praying for you.  It's just not fair hugh?  I only go 3 or 4 times a day with no D...love the new life it gave me...
Leslie King
  1984 Tubligation  1992 Diagnosed with Thyroid tumor    
1993 Gallbladder Removed  1997 Hysterectomy  1998 Carpol Tunnel 
 1999 Spinal Cord Surgery for a Anacroid Syst
2001 Lower Lumbar Fusion L4-5  
2003 Sigmoid Colon Resection
 2006 Right Knee Replacement 2005 Breast Reduction
 2008 RE-did the Lower Lumbar Fusion/ lamanoctomy
2010 DX: colonic Inertia/ Pelvic Floor Disorder
2010 Total Colectomy ABD W/O proctectomy; w/Ileosto

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