I have had IBS since, the earliest I remember, 1984. NO BOWEL CONTROL, period. It got worse in 1987. I would have to pull off and use the bathroom ANYWHERE I could. I couldn't eat and go anywhere because I'd have diarrhea. This cut out any kind of trips. Then I had my gall bladder removed. OH BOY did it get worse then! Still, I wouldn't ask a doctor what to do because I was too embarrassed.
All of this time, I had Multiple Sclerosis as well and didn't know that until 2006 when I was dx'd with Secondary Progressive MS. This affected my control as my brain isn't communicating with my rectal muscles. I can barely contract in that area SO if I even did try to hold it in, which was pointless anyway as you all know, I couldn't.
Well, here's the GOOD news! I finally did tell my doctor. I've been wearing Depends for a year, having accidents has become more and more frequent. Not once a year, a month, but more than once a WEEK. She just happened to remember a medication used for cholesterol that causes such bad constipation, she had actually stopped prescribing it. Her nurse's mother was using this med. for the same thing as me and having wonderful results. The name of the medicine is "PREVALITE POWDER, 4 GRAMS." She gave me a recommended dosage but told me to adjust it to my specific needs, as I am already on a cholesterol medication and this medicine is completely harmless as far as I know. It's an orange flavored powder you mix with water or juice and take it as needed. PLEASE, mix it with cold orange juice. Mixing it with water nearly choked me. Now, she prescribed me 2 scoops a day. I have learned I can do with a half a scoop and be just fine all day and still usually go to the bathroom at night. If I'm not leaving the house, I don't take it at all so I can use the bathroom. Listen THIS stuff works like a CHARM! In the 26 or so years I have been "in the closet" about this disorder, this is the first glimmer of hope I've seen! I mean I can eat FRIED food, drink caffeine, go shopping, anything I want and NO FEAR of losing bowel control! I AM ELATED! THIS is the key!
Please, go to your doctor and ask them for Prevalite Powder. Adjust it to your specific needs and I promise you, you WILL be amazed! I really thought I would suffer from this forever, and true, I'm not cured, but it isn't an issue now! It's truly a miracle to me. Oh, and NO MORE DEPENDS!
Let me know if you get it and how it works for you. I'm SO happy about this(and NO doctor really thinks to prescribe it for diarrhea) I wanted to help others. Good luck!