I was diagnosed malrotation of small intestine a month ago, the doctors seem to think it is not life threatening, tell me to suck it up! Sent me a referral to Stanford, after they gave them the wrong phone number to contact me 3 weeks ago. I got an appointment, to see a surgeon, in another week now. This has been 5 months of this pain behind my right side ribcage. I use to walk 5 miles a day, and now I can't walk 100 feet without collapsing. I guess adrenaline occurs and feels like severe heartburn, then the very strong pain, donnatol usually relieves it, but it comes back. Upper GI showed everything normal. After many visits to ER at different hospitals they finally got the attack on a CT scan and it showed the malrotation. No doctor seems to think it is worthy of their time, tell me to stop eating as much, stop eating gluten, feels like I should stop living a life and be sick all the time. I'm so frustrated, the pain gets so severe at times I think I'm going to pass out. The burping is almost constant. Gastro guy sends me for a motility test, barium, and many xrays, and it showed nothing is attached in the cavity, every organ associated with intestines and stomach are moving freely, doctors say they never seen it before. Once again, no big deal, live with it. Why won't doctors take this serious? This hurts really bad. I'm 55, never felt this pain till the last 5 months. I can't lay down or get excited about
anything, brings the attack on, and I sleep sitting up now (5 months now), and my neck and upper back is trashed now. What can I do for the pain, to free myself of it, and be able to walk again? I hope Ladds surgery works, but if it doesn't then what? Die?
Post Edited (coco011) : 12/7/2014 1:49:51 AM (GMT-7)