Sorry for not responding to this sooner. I forgot I had posted earlier! I have been seeing my GP, rheumatologist, and gastroenterologist. The ANCA showed an atypical pattern of (very) high titer (1:320) (specific to ulcerative colitis or a few other autoimmune conditions) so it is increasing and that is a concern. I haven't had the ASCA (baker's yeast - specific to crohn's) values checked for a while but they were also high in July. My other blood tests were in the normal range (including sed rate and CRP which are inflammatory markers). The rheumatologist insists I have IBD, but the gastroenterologist believes it is functional (IBS) (the small bowel capsule endoscopy showed no evidence of crohn's in August). I am going to ask for a colonoscopy as soon as I see my gastroenterologist again in 2 weeks as it is strongly recommended by my rheumatologist that I have it.
I ordered a home-test for SIBO a few months ago because I thought SIBO might possibly explain my abdominal cramping. I tested negative for SIBO (but since I ordered the glucose test, not the lactulose test I can't rule out SIBO in the lower small intestine region - I didn't have a prescription for the test)
My main symptoms are fairly nonspecific:
1) Cramping a few hours after meals, sometimes extreme knife-like gas pains around my bellybutton that seem to last several hours and even into the next day. Fortunately this happens only once or twice every couple of weeks.
2) Chills without fever, cold hands and feet
4) Stress and anxiety (probably because I am constantly monitoring my symptoms)
At this point, I am wondering if I might have another autoimmune condition (and the IBS is leading us into the wrong direction) since I have had chronic allergy/sinus issues. They have largely improved since my last sinus surgery (in 2010) but it would explain my hypersensitive reaction to chemicals/environmental allergens. Otherwise, i might be developing IBD as these tests can be precursors to actual illness. I have started to see a nutritionist to see if I can start an autoimmune diet just in case (like the specific carbohydrate diet which I am trying to incorporate into my diet). The nutritionist suggested I get a LEAP blood test done which measures sensitivities to 150+ common foods. It is supposedly highly accurate so I will know within a couple of weeks if there is a particular food I am reactive too. Sorry that this is so lengthy of a response. I do appreciate your input as I am having trouble finding out what these IBD blood tests indicate and if there is a potential for false positive results.