What you can do if you considering getting tested is continue eating gluten and request bloodwork. Keep in mind that there is a very high false positive rate but false positives are virtually unknown. Many doctors like to do an endoscopy (easy procedure - sounds worse than it is!) where they take biopsies from the area to see if the villi is flattened. That is what happens in celiac disease. The villi in your small intestine are flattened (they are the hairs that are vertical in healthy people) thereby causing malapsorption, lots of diarrhea and/or constipation, rashes, IBS, pain, migraines, miscarriages...the list goes on and on. In order for the endoscopy to be done you must be eating gluten, too. There are also lots of false negatives if done incorrectly. In fact, 40% of biopsies are done CORRECTLY in the US and 39% in Canada. So, a leading celiac specialist in Canada says (I was at a recent lecture) says at least 8-11 biopsies must be taken from different parts for a more accurate result (many surgeons only take 3). Anyway, as I mentioned the endoscopy is easy. It SEEMS hard (the tube goes down your throat) but you have totally no memory of it as you are given drugs. The last thing I remember is seeing the tube then I was waking up in recovery (procedure is quick).
Now that I know so much about celiac it hurts when I see so many people suffering without having any clue what is happening. Did you know that it takes an average of 12 years for a person to be diagnosed with celiac? So many doctors unfortunately are not very knowledgable about it.
Celiac is heriditary so chances are good if you have other family members with problems you could have it. In fact, when a person is diagnosed with celiac (from biopsies) other family members must be tested as it is a serious disease (can cause tons of problems down the road).
To reiterate - sure, it is very difficult not to eat what you want and scrutinize every single thing you eat and be a detective tons of people are doing it every day. Like other things it does get better with time!
Again, I truly hope you do not have it but so many people who are diagnosed with it after many years are actually relieved because after going gluten free for as little as two weeks can show vast improvements. It is said that if you are strictly GF your insides heal in 2-5 years depending on the damage and can be just as healthy as the next person. BUT you must be GF for life regardless.
All the best!!