Hello you all!
I have a long history with this syndrome- it started when I was 7 years old, and I am 39 years now. And as a young boy I couldn't speak about
it to anyone because I was so ashamed about
it because it is related to rectal area. The severity of it fluctuates and it can be as bad as others have told that you almost or literally pass out, or you wake up at night with an hour long pain. It took thirty years for me to get a name for it and over ten years to even mention it to a doctor.
What has helped me is the knowledge that in my case it is connected to stress- and when I understand that, it is easier to cope with the pain because I can try to control the stressful events in my life with different kinds of relaxation methods.
But, here is the total winner for me, yoga pose "downward facing dog" -Adho Mukha Svanasana, or modification from it, seems to help to relax the muscles and ease the pain. The idea of the yoga pose is that the position will force the muscles to relax by stretching them and therefore tension will relieve over time. Also relaxing one's jaw muscles will help to relax the muscles in rectal area, method used by women giving birth.
I think I read it from this thread also. When I told about
this syndrome to my wife, she told me about
this pose and we modified it a bit so I can take the pose for example in our bed at night. Whereas in the original pose you are standing on your feet and arms, I tend to be on my knees and elbows trying to find the spot where it stretches the muscles in my pelvis and buttocks. This truly saved me. I had the episode just last night and I woke up, took the pose and relaxed my jaw- the episode was over in couple of minutes. It is even an positive cycle when I can feel the muscles relaxing it relaxes my mind also and it quickens the process.
Post Edited (pmard) : 4/21/2017 12:31:36 AM (GMT-6)