Posted 7/16/2013 8:02 AM (GMT -6)
I am a 25 year old female who was diagnosed with a malrotation at the age of 14 on accident. I was not showing any signs or symptoms other than just a little acid reflux and was sent for an Upper GI just to be safe; this is when they found the malrotation. I had a full rotation of the intestines. After the surgery I was ok for a few years and then that's when everything started to go down hill. I was having severe pains in the upper left quadrant of my stomach (right) if your are looking right at me. I went through two removal of adhesions procedures in 08 and 09'. After a few months the pain started up again and in 2010 I lost 13 inches of my large intestine due to it being ischemic and then my gallbladder that same year in August. Subsequently after all of this I am still having the pains and was sent to Cleveland Clinic and told that I have mini bowl obstructions (that cure themselves) and that there was not much more I could do. No about a month ago I was hospitalized for a week because my pancreatic levels were up in the 4,000 and now the doctors cannot figure out why my pancreas is acting up now. The one gastro doctor I had been seeing said it could be to ischemia but my main question is What Now? Do I just sit around and wait until everything in my stomach becomes ischemic? I still yet to have a doctor who can tell my why I keep having this ischemia in the first place!!! If anyone knows of gastro doctors (anywhere) I would appreciate it.