Hi Everyone: I was typing away and lost it. Will start again. I read the post about
I was born with stomach problems. I do believe the Doctors were not totally sure what was wrong with me. I ended up in the Hospital due to severe diarrhea shortly after birth. My Mom had to double sterilize my bottles and I was on a strict diet. I had no sugar until after age 3. I believe that they must have tried Sulpha drugs as my Mom told me I was allergic to them. She later said it made my skin have a reddish rash and it was discontinued. In the end a Doctor told my Mom I had Celiac Disease. I was, however, not kept on a gluton free diet. I think Doctors at that time might have believed that you could go into remission? After age 3 my Mom slowly introduced foods and if I did not have a bout of "D" she could continue. I grew up with bouts of "D". Often times my Dad did not work at jobs that had medical coverage. At that time Canada did not have coverage for everyone. I just lived with I.B.
I was married at age 17 and had my son - same age. I had an infection after childbirth. I had a number of infections throughout the years. Bladder, eye and ear. I always took antibiotics, as prescribed. I decided to try an IUD maybe year 1974. I then decided a few years later to have it removed and I was trying to have another child. The Doctor told me it was out. He actually checked a bit inside. I went back to see him as I could not get pregnant. I gave up trying and went on the pill. I had a lot of trouble with very long periods. We moved and a new Doctor did a D&C but nothing found. Continued with problems. An ultrasound found nothing. Years later I started getting pain in my left side of my stomach. A better Ultrasound was done and the Technician found the IUD inside me. It was there for 22 years. The Doctor had passed away. I had a tubal ligation done before it was found. I never knew why I could not get pregnant. I was rather angry. I had to move on and say it was meant to be.
Three things happened all together. This was the first. Second was a bad car accident - very stressful. Third - I began to have stomach problems. I was putting on weight in my stomach and began to feel all kinds of creepy movements. Still had bouts of "D". I was referred to a Gastroenterologist at a top TO Hospital. I actually thought that maybe I should try a gluton free diet. I thought maybe that the D&C might have caused the Celiac Disease to flare up. I effectively put myself on a gluton free diet prior to seeing the Gastro Doc. I thought I was making some improvement. The Doc had me try eliminating coffee and then dairy. I was becoming lactose intolerant. I had to go back to eating gluton so he could test for C.D. He waited a few weeks and then did a Sigmoidoscopy. He checked for C.D. and also checked for parasites. Nothing found. The final test was to do a Colonoscopy. Again, nothing found. I knew I was lactose intolerant. Problems continued. I always had a flu shot. One year, shortly after, I found that whenever I ate eggs I would have severe "D". Usually only one bout a day. I was still able to work. I just barely made the drive in one day - my stomach needed to go so bad. Luckily I held on. Then one night I was trying to go to sleep and had to get up to go to the washroom. I was having so much trauma inside. It then all erupted. I was bleeding. My Husband came with me to ER. It was about
12:45 a.m. I sat in ER till 3:30 and was still not called in - was just waiting in the lobby. There were so many sick children that night. I finally said I would make my way down to see the Gastroenterologist in the morning. Not bright. I was still bleeding. I drove myself down. It was near my work. I found the Gastro Doc. He was concerned about
Hospital protocol - what did the other Hospital do. Anyway, he had to help me or send me to their ER. He helped me. Endoscopy found colitis. He said to his assistant to indicate that it was acute colitis with rectal bleeding. I was wheeled in the recovery room but I was sent up shortly after to see him. He said a had colitis. He said it might be Crohns. He gave me a prescript
ion for antibiotics. He said you might not need them. Next day I was still bleeding. Told him I would fill the prescript
ion. Scary meds. I could feel them moving through me. Had to drink lots of water and stay out of the sun. Massive amounts of infection eventually passed out. I went for follow ups and I was checked to see if the infection was gone. I was given the clear but I still did not have a solid bowel. He did one more Endoscopy and then told me to try Lactobacillus.
Oddly, the Gastro Doc did not explain C. Diff to me. I found out more doing research. My FP said it can take many years to recover. I found a good product - PB 8 that worked well and was OK to take on travels. I eventually was able to stop using it. I still each yogurt everyday. Am I OK. No. I have neurological problems. I have OA, FM, I.B. and Neuralgia. I am alive. My stomach has gotten better with Magnesium supplements. For the first time in my life I had a proper bowel movement each day. I am struggling again now with bouts of constipation. I was using Magnesium glycinate 2 times a day. My Headache and Pain Relief Doc suggested I try Magnesium Calm. So I take 1 Mag Glycinate in the morning and Mag Calm at bedtime. I was quite afraid of meds but with many issues I have to take meds. I have still had infections and have had to use antibiotics.
The one thing that has me concerned is reading that a PPI that I use with NSAIDs is not good for long term use. Been on it for 12 years. My Headache Doctor could provided no answer when I asked if the PPI could be causing some of the stomach problems. One article discussed PPIs and mentioned C. Diff. Will have to see my Family Physician. OA patients are not being referred to Rheumatologists in my Province. They are referred to pain clinics.
I still have I.B. and too much gas of late. At first it was just little bits of quiet gas but now - not so. Very embarrassing. I have passed gas at 2 different Doctor Appointments - just tried to ignore it but was embarrassed.
I now know that antibiotics set the stage for C. Diff. I asked if I might have had C. Diff. from birth but the Gastro Doc did, of course, not know. I read an account of a baby with C. Diff. I asked if the operation (D&C) is where I might have picked up C. Diff. Doc said - unlikely. It is, however, possible. I also was going to help my Husband's Grandmother in a Nursing Home - another possibility of where it was acquired. I wash my hands so many time a day with soap and water.
Also, do not have Celiac Disease but am still lactose intolerant.
Glad to read about
the person with C. Diff getting better now.
Sorry for the long intro. Have posted on OA, FM and Chronic Pain sites.
Post Edited (Loring) : 7/28/2014 3:13:46 PM (GMT-6)