Sick&Tired, I know what you're saying about those trips. For a while I was going 30+ times per day! Now I take Lomotil twice daily and even though I still have the big D, it's only 2-3 times a day and that is totally manageable. It has been six days since I had one of my awful days, and I'm psyched.
Mayo put me right through to the GI department straight away. I saw Mangen, a GI attending, and Ghazale, a GI fellow. They didn't think it was IBS so I didn't do any motility studies. They sent me for an infectious disease consultation based on my travel history, and I saw Dr. Edson over there. I had blood and stool tests, upper and lower scopings, and a CT scan. Stool tests showed occult blood and leukocytes, upper endoscopy showed stomach erosions...but nothing they could definitively diagnose. They were nice people, and empathized with me, but I was surprised by their reaction - pretty much shrugging their shoulders. "Yes, obviously this is dictating your life; no, it's not normal for people to go 20 times a day and have blood and pus and white blood cells in their stools; unfortunately, we can't tell you what's causing it." It was just a shame that after all that effort - and all those horrible tests - they weren't able to pinpoint the cause and thus streamline the treatment. My PCP here, who I just saw yesterday, thinks it could still be Crohn's disease, and is helping me keep an eye on things.
Mayo is not a mecca of healing. The doctors are specialists, and they're good, but they're still people. They are still fallible. If you have a good doctor in your area that you trust, to whom you can go and say, "Listen, I've been reading about this thing, and I wanted your opinion on it" - you're golden. Mayo may be able to offer a different perspective, but maybe not. What are you looking for from them?