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Irritable Bowel Syndrome
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Posted 9/29/2005 12:45 PM (GMT -6)
So i finally found a doctor who would listen to my complaints and he ordered me an endoscope and a colonoscopy. I went through with both of these and the colonoscopy was clean and the endoscope showed some adhesions but not more than GERD. I have been suffering with symptoms of crohns for over a year now and its really irritating. When my doc told me its Gerd and Ibs i was like ok ill take it, because at the time i felt fine, no pain or anything and i could eat what i wanted to. I take prevacid for hte Gerd and well nothing for IBS since the two meds they perscribed made me vomit. now its about three weeks since the two procedures and i find severe pain up near my rib cage and my stomach is so full of gas that there is no way to get rid of it. I tried layin on my side with one leg up, i tried gas x which made the pressure and pain worse. Then i thought id try like a laxative, wrong idea, i got no results and the pain increases. This is gettin ridiculuous. I am 21 and i have no idea what to do or what to do to stop the pain. Is there any way to stop the pain near my sternum and belly button? Is there anything i can do for the build up of gas taht never goes away? Like can anything else be wrong? Even if the colonoscopy and blood work came back good can i still possibly have CD? The only reason i think its CD is becuase i sometimes bleed and have black poops which my doc can't explain since my colon was clean. oh well....any help would be great, sorry its long.
Posted 9/29/2005 1:03 PM (GMT -6)
Grumpy my friend - I hope you don't mind if I ask a rather personal question. Please take no offense.

Do you, or have you participated in any activities (other than the clinical procedures you just described) that might put tears in the lining of your lower intestinal tract? Have you inserted anything that might cause irritation or bleeding. There are a number of possible activities which could cause bleeding. Also, a bowel clogged with an obstruction that has not been removed, or has passed to far up to be easily removed could also cause some of these symptoms.

You mentioned black poops. Are they very small and pellet-like?

Yhcrana
Posted 9/29/2005 1:04 PM (GMT -6)
Hey Grumpy, I know where you're coming from.  If you're having blood in your stool, it could be from hemorrhoids, or if it's copious amounts of blood, there's probably something else going on.  Do you have a lot of diarrhea?  That is a hallmark symptom of Crohn's, in addition to fever, night sweats, mouth sores, joint pain, and abdominal pain (usually lower right quadrant).  When did your symptoms start?

If you're having severe URQ pain, it could be symptomatic gallstones.  Have you had an ultrasound?

Posted 9/29/2005 1:26 PM (GMT -6)
Yhcrana, I believe that grumpy stated the adhesions are in the upper gi tract.

Grumpy, The blood may very well be coming from hemorrhoids which are not uncommon to bleed a lot. The dark blood in your stool sounds like its coming from your upper GI tract (probably from the adhesions)... also if you take Bismuth (Pepto Bismul) it can cause your stool to be black.
Posted 9/29/2005 1:30 PM (GMT -6)
Thanks, you're right. Grumpy did mention the adhesions in the upper GI.

I would have thought that if hemorrhoids were a possible that Grumpy would have mentioned it. They should have been especially obvious during the colonoscopy.

Grumpy, have any of your doctors checked for an obstruction of some kind?
Posted 9/29/2005 1:49 PM (GMT -6)

ah, thanks for the replies. 1. I am a girl, lol and no i have no engaged in any activities that could cause problems, lol.

2. I don't have hemi's i did for like a week but i really don't think thats what they were it actually felt like tearing in my butt, its was horrid.

3. I am afraid my doctor will think im crazy if i go back after being scoped from both ends complaining that im in tons of pain. I woke up 4 times last nite in pain and just laid there, i couldn't stop the pain. i haven't slept a full night in a month.

4. I am on Levsin but that does nothing but cause dry mouth.

5. yeah i  have cold sores and stuff in my mouth but my BF has Crohns and since cold sores are contagious i always get them.

6. I don't have D i have C, and really bad at times, sometimes i won't go for 10 days and by then i wanna die. I try all sorts of gunk to ease that and no relief....its frustrating

I was fine with all this crap, until the last two days. Now its starting up again, it seems im good for a week and flare for three, sometimes it feels like chest pain other times its near my belly button. right now its where ur sternum ends and down toward the belly button, having a BM does not help, nor does passing gas, i am beginning to worry.

How do i tell my doc i want more tests? Or how to do i say that i feel sicker now than before the colonoscopy and endoscope? like really what do i do? i have no one to talk to or anything, and my poor BF who is in remission is gettin sick of me being sick....its disheartening

Posted 9/29/2005 2:58 PM (GMT -6)
What is a Heath Healer DP? What credentials do you carry as an expert in this field other than your alleged anecdotal symptoms?
Posted 9/29/2005 8:46 PM (GMT -6)
Hi Grumpy and welcome. I read your post on the crohn's forum saying you were newly diagnosed with problem in the TI and are taking Pentasa. Do you have a crohn's or an IBS diagnosis?

Either way, a heating pad/hot water bottle can help with the pain as can some Tylenol 3's
Posted 9/30/2005 7:36 AM (GMT -6)
This doctor i saw said no crohns just IBS and Gerd, i fully believe its crohns. I am one confused child
Posted 9/30/2005 10:40 AM (GMT -6)
I'm sorry that you're in so much pain. My daughter has to go next Wednesday to have a Colonoscopy & Endoscopy done. The blood results show that she is at high risk for getting Celiac Disease. Now you said when you go to the bathroom your stool is dark. I know that sometimes when you have a Ulcer your stool can turn dark from bleeding in your stomach but you said you had a Endoscopy done. They would of saw a Ulcer if there was one. I hope you feel better soon.
Posted 4/16/2006 9:05 PM (GMT -6)

Dear Grumpy,

There is a product called Primal Defense that will most likely help you.  Check it out at www.gardenoflife.com.  It helped me and many,many others with Crohn's, IBS, and a whole slew of GI problems.  It is a very powerful probiotic, you can read about it on the website.

Spinerulz

Posted 4/16/2006 11:32 PM (GMT -6)
I would not hesitate to go back to Dr. as it doesn't sound like regular IBS if there is such a thing. LOL After I had both tests my Dr. did a pelvic and abdominal CT scan with contrast just to put my mind at ease as I was getting so much cramping. Nothing showed up in any test. Hence the IbS diagnosis. I think Crohn's does show up pretty easily on colonscopy. I assume they did all the biopsies for the various bacteria like H. plylori, giardia,etc. but since you have C rather than D it is probably not that. I don't know why the Gas-X would make it worse. that is a puzzler. Have you tried something as mundane as Pepto for the gas and a stool softener for the C. The fact that you don't have it all the time doesn't sound like an obstruction. I think you would know that. I would go back. Also keep the heating pad close. Happening on and off sounds like spasms but maybe you need something stronger than the Levsin, more of a relaxant. I always have more problems after conoloscopy I have no idea why. I would see Dr. and tell him what you have told us. Good luck
Posted 4/17/2006 10:24 AM (GMT -6)
I know some of the Crohn's people were a long time in being diagnosed. Can't it manifest itself up higher than is seen by a colonoscopy? You might want to look into getting one of thos camera pills done so they can look at all of your intestines.

Have you tried any anti-depressants? There's supposed to be one or two new ones out there that help folks with IBS. Your constipation could be a motility issue--i.e. your guts aren't moving the poop along. The blood in your stools could be from the lesions in your stomach/esophagus.

Definitely check out the Crohn's board for information from them.
Posted 4/17/2006 11:29 PM (GMT -6)
Yes I have CD and suspected IBS as well, I've had obvious CD for 15 yrs now, there was never any mistaking that I have CD...unfortunately colonoscopies are not a sure way to totally DX, especially since CD can be lurking in the small bowels where a colo exam doesn't reach, ask for a SBFT (small bowel follow through) and blood work if you havn't had that done already...pancolitis is another one that comes to mind, it's true, there is no bleeding with IBS unless there are hemmies involved, which can be internal and not always external so it can be hard to know if you have a hemmie for sure when they're internal, on the other hand since you say you have constipation, you could have an internal hemmie caused by being constipated...

one other thing though, as mentioned above D is usually a hallmark for CD but CD can be either C or D like IBS...hope I havn't confused you more but it's important to get all the facts.

I'd be making sure to get blood work for IBD and the SBFT and in the case of microscopic colitis (aka, collagenous colitis) and even pancolitis asking for biopsies to be done when having a colonscopy.  Having your stool tested would be a good idea too.

good luck!
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