m&ms, yeah, it has been quite the rollercoaster. I have been tested for C. diff something like 3-4 times and it has always come back negative; also, I very rarely use antibiotics. I had Giardia and amoebiasis in Africa that supposedly cleared up when I got home. I was given Flagyl on numerous occasions - twice after my stint in Africa, and twice after my stint in South America. Sometimes it helped, sometimes not.
This year has been different - since January, I lost 30 pounds (I needed to lose those, but I had no idea why it was happening!), have had watery diarrhea about 75% of the time, fevers that come and go, mouth sores, abdominal pain, developed gallstones...and it's weird because some of the tests I've had (small bowel follow-through, for instance) show abnormalities that some GIs say are consistent with Crohn's disease, but others say are non-specific. Scopes are normal, but I've been passing blood and leukocytes, which is usually indicative of IBD or infection. So some docs say I don't have IBD, others say I might...the one thing they all agree on is that it's not IBS, but they don't know what to call it yet! It's been frustrating, and tough when I'm at work, but I am hopeful of one of two things: a) this will eventually get better on its own or b) this thing will eventually get to a point where a diagnosis is irrefutable and I can start pinpointed treatment. I haven't had the p-ANCA or ASCA tests yet but should be doing that within the next month.
I post on this board because everyone is so freakin' awesome and supportive and helpful (as you can see!). I think there are a lot of people out there who are misdiagnosed. I can't blame medicine, because we are constantly learning new things about the body, but it is definitely heart-wrenching to be sick nearly constantly and not have any answers. Luckily I have a wonderful doc who is leaving no stone unturned for me. It sounds like you've been through most of this as well, that you're in the same boat. You're still in Bolivia, I assume? Where are you there? I was in La Paz buying instruments...I play traditional Andean music and had a blast down there (despite the diarrhea!). What do you do for work??