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Regular Member

Date Joined Aug 2005
Total Posts : 296
   Posted 10/12/2005 7:59 AM (GMT -7)   
 I am not sure if anyone here can help me, but my daughter has been sick for a few months and after finally getting her to see the dr last night he says she has Celiac... I am not sure i believe it and he never ordered any blood work, from what i read there are 3 blood tests that will tell you if you have it? Where do i go from here, the dr said to give it 2 weeks on a glutin free diet.....where do i go for recipes to accomidate this....I am at such a loss here for ideas........any help or guidance in the right direction is greatly appreciated.
 They say laughter is the best medicine....then why are my pants wet, my gut sore and I am still laughing!!!

Veteran Member

Date Joined Jan 2004
Total Posts : 4151
   Posted 10/12/2005 8:33 AM (GMT -7)   
Hi Jody,
I don't have Celiac but Celiac has to be diagnosed through tests (blood tests) so I agree with you, I am not sure how the dr could have given this diagnosis without it. They can dx Celiac through biopsies via colonoscopy also. You may want to try your daughter on this diet to see if there is any improvement. If there is improvement, that may not necessarily mean Celiac it may mean a gluten intolerance also. Wheat and gluten are in a lot of food so I would maybe check some online sources to see if you can find particular recipes. I wish you luck with this and maybe some one who is on a gluten free diet can help a little more.
Hugs, Des
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Regular Member

Date Joined Sep 2005
Total Posts : 263
   Posted 10/13/2005 6:13 AM (GMT -7)   
Hey eyesoffire, i am in the process of being tested for Celiac, i had the biopsies and the blood work done and now i am in the wheat/gluten free diet days.
do you have Celiac in the family? i do and found that apparently the irish decent can carry Celiac (though i am only a bit irish) i have not been confirmed with Celiac (yet) but have noticed a huge difference after not eating wheat/gluten--in just 2 days i began to feel better. i might just be sensitive or intolerant to it.
i was told to remain w/g free for 3 weeks...
as for recipes and such: i found a "celiacs helping celiacs" website
(i guess it did not create a link, sorry.) or google Celiac Sprue. also i have a "whole foods" by me, they have pamphlets on the diets, it tells you which company makes w/g free foods. if you don't have a organic/health food store, some major grocery chains are providing a natural line, there might be some help there.
mainly i have not been buying any processed foods--hidden wheat (modified food starch is actually wheat...) i have been eating a lot of rice, meats, veggies and fruits and plenty of water. i modifed some bread recipes with rice and soy flour--tastes dense. it is hard to get used to, but i just do everything "home made". you have to read lables though--everything has wheat/gluten in it it is ridiculous.
is she just on gluten free? (gluten is found in wheat, barley, oats and rye--and even corn. it is also in rice but it seems that rice is okay on the diet.
how did the doctor determine it was Celiac? what were sypmtoms? (i am asking because mine were diarrhea attacks.. basically painful fecal incontinence, and very foamy poo, and a whole lot of constant pain) but it was after the foamyness that i had cut out the wheat and gluten and haven't had an attack since. like i said though, i am in the process of finding out...
so my ultimate suggestion for getting through the next two weeks.: read all lables!!! (everything including condiments, i was using a mustard that had wheat! there are sites that have what wheat is often called in products, i will try to find the site and post it for you.) stick to rice, veggies, fruits, meats. find a organic/natural food market in your area, i was able to get w/g free cookies, pasta, bread, waffles all the fun stuff to make me feel normal... also if you have a doubt on a product i have been googleing it with the words "wheat gluten free" and i have found information 100% of the time. oh and no alcohol (i don't know how old she is...) though with liquor the distilling process removes the gluten, but if it was made from grains it is most likely a no-no...
but don't fear--the diet is doable-- even when i make dinner for me and my husband i will make something wheatish for him and i am very careful to not cross contaminate anything, it takes getting used to, but i am feeling so much better that it is worth it. (my only complaint is that my immune system is really low and i keep getting head colds and sore throats.)
best of luck to you though, let me know if there is anything i can do...
what would you attempt to do if you knew you could not fail?

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