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Irritable Bowel Syndrome
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Posted 11/15/2005 9:34 AM (GMT -8)
I HAVE BEEN SUFFERENG FROM ULCERATIVE COLITIS 13 YEARS.I HAVE BEEN REALLY ILL LAST THREE MONTHS.I HAVE BEEN IN AND OUT OF HOSPITAL.I HAVE HAD COLONOSCOPY AND ENDOSCOPY.COLONOSCOPY SHOWED THAT MY BOWEL APPEARS NORMAL ALTHOUGH MY ENDOSCOPY BIOPSY RESULTS TESTED POSITIVE FOR HELIBACTOR WHICH I HAVE BEEN TREATED FOR.MY DOCTORS SAYING THAT I HAVE IRRITABLE BOWEL SYNDROME BUT IM NOT CONVINCED.I HAVE LOST 4 STONE AND IN CONSTANT PAIN. I AM NOT PASSING BLOOD BUT BOWEL MOVEMENTS AND CONSISTENCY VARY ALARMINGLY.MY WHOLE STOMACH AREA IS SHAKING AND IN SPASM.PAIN USUALLY DOWN RIGHT SIDE LOWER GROIN AREA AND LOWER BACK. IS THERE ANYONE OUT THERE WITH SAME SYMPTOMS.IS THERE ANY COLITIS SUFFERERS WHO HAVE EXPERIENCED ANYTHING SIMILAR.
Posted 11/15/2005 9:47 AM (GMT -8)
Hi Martin,
Welcome to HealingWell! :-)
I'm sorry to hear you are in so much discomfort. I know we have a couple members with UC and IBS. Unfortunately, the one I can remember is out of town all week (dbab - forum moderator). I know she hasn't had too many UC symptoms, although recently she has gone from C to D. I also know she is on an antispasmodic. Did your doc prescribe one for you? Any pain meds? Are you on anything for the UC (like steroids, etc.)? I know that many meds, and IBS, can contribute to variance in the consistency of BM's. I go from C to D and so I hardly ever have a "normal" BM. Recently, I remember seeing a post on here about back pain.... so please know you are not alone.
I hope you find the help/support you are looking for here.
Take care.
Posted 11/15/2005 5:19 PM (GMT -8)
Hi Martin and welcome. From what I've been told when you have IBS you're not in constant pain which you say you are so I'm more inclined to think it's your UC rather than IBS acting up. Maybe your dr. could prescribe some anti-spasmatics for you to help with the spasms. I hope you get relief quickly :-)
Posted 11/16/2005 10:45 AM (GMT -8)

I do believe myself that it is the UC.I am taking Buccastem for the spasms and my doctor has started me on new NSAIDs called Arthrotec 75 so i might get relief from these.Im not losing blood which is unusual for me as every other flare up has involved hospitilisation due to high blood loss. have also tried paracetamol,tramadol and deydrocodeine for pain but they didnt help. Anyone know any good painrelief?I wouldnt normally take painkillers as most of them constipate you but sometimes i really need them.

Posted 11/16/2005 12:01 PM (GMT -8)
Hi Martin,
It sounds like you need something stronger than any OTC. I would schedule an appointment with the doc to discuss your options for pain medication. Keep pushing until the doc gives you something that works. I know that Sarita is on Vicodine and Morphine as needed.
Sorry, I hope you get relief soon.
Posted 11/16/2005 12:12 PM (GMT -8)

Hi Martin,

Anti-spasmodics can help with mild to moderate spasms and cramping, but for the really horrible days I do end up taking Vicodin.  I appreciate its pain-relieving mechanism but don't care for the "loopy brain" phenomenon that accompanies it.  When I take a narcotic painkiller I am pretty much non-functioning, but comfortable, whereas I'd be non-functioning and extremely uncomfortable without it.  The added bonus is that it does seem to constipate me and that is sort of a relief since I have constant intractable diarrhea.

You should ask your doctor whether they are willing to either refer you to a pain management clinic or give you a script for narcotics that you can use sparingly, when the pain is just unbearable.  I'm sorry to hear you haven't found relief so far :(

Posted 11/16/2005 4:19 PM (GMT -8)
What is Vicodin is it an American drug.I live in Ireland and am not familiar with it. I cant take anything too strong because i have a little daughter who needs 24 hour intensive care. I'd be afraid that they would leave me high and unable to care for her.i can usually struggle through days but on my really really bad days my wife usually takes off work to care for our daughter, so they could be a valid option.Thanks for your replies i just wish i had found this site 3 months ago(onset of flare up). It has been a great source of comfort to me.
Marty
Posted 11/16/2005 6:13 PM (GMT -8)

Martin, the generic name for Vicodin is hydrocodone.  There is also oxycodone (Percocet), morphine, and some other narcotic pain meds out there.  As far as the anti-spasmodics go, their generic names are hyoscyamine or dicyclomine...plus a couple others.  When is the next time you see the doctor?

I'm sorry to hear you're struggling with this on top of having an intensive-needs daughter.  It must be really difficult!  That's great that you have a supportive partner, from what it sounds like...hang in there.

Posted 11/17/2005 11:58 AM (GMT -8)

thanks sarita for your help.Really appreciated.

marty

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