New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Orchidfox
New Member


Date Joined May 2017
Total Posts : 16
   Posted 8/20/2017 7:58 PM (GMT -6)   
Hi,

So as my post before this, I'm the one that already had endoscopied, colonoscopied, swallowed pillcam, all came back clear. CRP blood test also negative.
The only one positive and high only the Calprotectin test at 573. Doctor baffled by this but based on all the scoops, he declared I have IBS-D

Last May I infected by amoeba in hospital (talk about unlucky), hospitalized a week with metronidazole. Call it miracle descend, after 4 years suffering loose stools, from June to early this August I became perfecrly normal, with good appettite and well formed stools, free from any symptoms. Until....

BAM 9 days ago it started hurt again, stools became like porridge then oatmeal like then just flat watery pile with foams. And my stomach constantly hurts a lot to the point I can't sleep or waking me up at night. All medicine prescribed for IBS-D like spasmomen, Librax and anti-diarrheal I have taken, which usually a bit help and the symptomps subsided in 4 to 5 days now nothing works! Up until I wrote this my stools still like watery oatmeal and foamy, even if I had took anti-D .....

Is it really IBS??? They said IBS never lasted more than a few days......im really scared if it's like the first diagnosis, which is Crohn......help!

iPoop
Forum Moderator


Date Joined Aug 2012
Total Posts : 13191
   Posted 8/21/2017 8:03 AM (GMT -6)   
You do not have IBD, such as Crohn's disease, unless inflammation was seen during the various colonoscopies you've had, and infection were ruled out via stool tests. If you lack inflammation then it is classified as IBS. IBD often includes a lot of blood in stool, especially with Ulcerative Colitis (another form of IBD) diagnosis.
Moderator Ulcerative Colitis
John
, 39, UC Proctosigmoiditis
Rx: Remicade @5mgs/kg/6wks; daily 75mgs 6MP, 4.8g Lialda, and 2X rowasa

Choose your own UC Adventure! You're driving to work and urgency strikes. Do you try and hold it as work is 5 miles away (goto page 12), look for the next highway exit (p13), or immediately pull over and poop in the woods (p14)

Orchidfox
New Member


Date Joined May 2017
Total Posts : 16
   Posted 8/23/2017 1:31 AM (GMT -6)   
My doctor also seems frustrated with me, all medicine he tried and he prescribed like spasmomen, mebeverine, librax, rabeprazoles, various probiotics like rillus and protexin having no result all this time.
By writing this I have been on my 12 days of loose stools, shaping like loose oatmeals and whatever medicine I take seems have no effect. The pain, rumblings are always centered at my right side under the right ribs. And (sorry) I'm passing winds so often sometimes it lasted all night with explosive sounds, sometimes I try to hold it in because looks like some stools is leaking due to how hard the wind passes. The same with burping....I think that's why my stools really foamy too.....Does IBS can be like that? My symptoms seems different from IBS I don't know what it is but I think it looks like something else. I'm really worried since it has been 12 days this time, my legs and spines been aching due to the stomach too....

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16767
   Posted 8/23/2017 9:07 AM (GMT -6)   
I understand your frustration but in all honesty, you can take IBD's off the table. With IBS it can go either way, diarrhea or constipation. Symptoms can vary with each person it is not a one size fits all. Maybe consider getting copies of all your test results & go in & discuss this with your PCP with thoughts of referring you to a dr that works a lot with IBS patients. My DIL suffered for years with IBS until she found a dr well versed in treating it.

Take care.
Susie
Moderator in Chronic Pain & Psoriasis Forums

Orchidfox
New Member


Date Joined May 2017
Total Posts : 16
   Posted 8/23/2017 7:53 PM (GMT -6)   
Hi thanks for all of your comments. I feel a bit better since most of you said can set aside IBD...hope really so...however the loose stools haven't subsided yet so it's officially been two weeks...don't know how much longer it will be. And the thing that looks like geographic tongue happening again too since, (it disappear when I have good formed stools at June that I mentioned earlier, and appears again when I started the D 2 weeks ago, so I thought it must has something to do with a sign for the stomach probs). It made my mouth looks horrible. Again, others said it's Crohn patient that always have geographic tongue condition in their mouth, not ibs...

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16767
   Posted 8/23/2017 9:08 PM (GMT -6)   
Hey Orchidfox, geographic tongue is not a condition caused by crohns disease. You may want to go to the Mayo Clinic's website & read up on it. It is not caused by infection or anything like that. Normally it goes away on is own, no time frame on when this will happen. I would talk to a pharmacist about something OTC to help with the diarrhea if you dr will not rx something. I have used Lomotil in the past with good results, but you need a script for that. You may want to consider consulting with a dietitian for some advise for gut friendly food for people with IBS.

Sure hope you get some relief soon. Take care.
Susie
Moderator in Chronic Pain & Psoriasis Forums

Orchidfox
New Member


Date Joined May 2017
Total Posts : 16
   Posted 8/29/2017 7:13 PM (GMT -6)   
Hi, so the test result for why I have loose stools these past 3 weeks , read as this :

Third time calprotectin levels :728! It's 2 times higher than the first....

Faecal culture shows many bad bacteria like e.coli, salmonella and shigella but they do not grow the test said.

I don't know what happen anymore. I am very strict at my diet since, I don't know where I get those bacteria. And the fc has became higher too. The loose stools still going until now so it has been 3 weeks.

Maybe my long term use of ppi, and several antibiotics because I had infections prior has disrupt my gut flora. Any thoughts?

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16767
   Posted 8/29/2017 7:31 PM (GMT -6)   
OrchidFox even though nothing grew on this test you have an existing nasty bug going on. The high calprotectin is not used to dx anything, it is an indicator for inflammation. These bugs are causing the high reading. What is the dr suggesting since you received this lab results? I don't think the PPI has anything to do with this. Depending on the antibiotic certain ones can cause havoc with the gut. What ones were you on?

Take care.
Susie
Moderator in Chronic Pain & Psoriasis Forums

Orchidfox
New Member


Date Joined May 2017
Total Posts : 16
   Posted 8/29/2017 8:17 PM (GMT -6)   
Isn't FC high means IBD? Doctor baffled because it always high but all scoops normal..

I had dysentery last May, and been IV-ed by metronidazole for 5 days. Then I got paromomycin for 3 days, I was ok with metronidazole, but when I took paromo my diarrhea got worse I had to go to the loo every 2hr. So the doctor stopped it. But after I had 2 months of symptoms free feels like been reborn and I can eat anything I want. Until 3 weeks ago,and here I am with all kinds of saying in latest test. about to go to doctor again this afternoon to show it, probably gonna get another antibiotics for the bad bacteria.

I don't know what's happening to me...I eat clean, and on probiotics regularly so how come it becomes so nasty inside...

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16767
   Posted 8/29/2017 8:59 PM (GMT -6)   
No, the FC is not used as a test for IBD. It is used to detect any inflammation. In your case the bacterial infection set off the inflammation. Your scopes were clean thank goodness, so IBD is off of the table.

You have a nasty bug that seems to be possibly somewhat resistant to the antibiotics you were given, or you were not on them long enough to know it out. My thinking is you were not on them long enough. I would also talk to a pharmacist about a recommendation for a good probiotic & discuss the one you have been currently been taking.

Hopefully the dr will get this cleared up once & for all. Take care.
Susie
Moderator in Chronic Pain & Psoriasis Forums

Orchidfox
New Member


Date Joined May 2017
Total Posts : 16
   Posted 9/5/2017 9:55 PM (GMT -6)   
Hi,

So I was back from my doctor, turned out I read the bacterial result wrong. They listed the nasty bug, then states "no growth" so my doctor said I don't have the nasty bug. That was the good news, but again I didn't receive any treatment for the usual symptomps. So I went to another doctor that couple of friends recommended before but I never put up to it. I doubt the new doctor can do anything either. And guess what. After seeing all my scoop result that was normal, and the constantly raising Calprotectin (lastest rise at 700-ish) the new doctor said in full confidence "Like it's true. You have Crohn. No way the FC this high if you don't. Maybe the scoop just doesn't reach the right areas." She said.

So the all came back clear scoop, endoscopy, colonoscopy and even the capsule all came back nothing and it still can miss the infected areas??

So I'm back full circle to the first diagnosis. Not IBS-D but back to Crohn. I don't know what to do anymore. I've been spent these 3 years back and forth to doctors, clinics, hospitals, I don't have life anymore, lose all my clients at job, lose my appetite since everything I eat triggers the symptomps no matter how I had strict diet to bland and soft foods, bind to home and can't do nothing since if I'm active a bit, heck walking too far on my morning walk can make me paid the price to bouts of pain and excessive gas and rumblings, then came the D and have to rest for whole week sometimes up to 3 weeks.

notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 16714
   Posted 9/5/2017 10:24 PM (GMT -6)   
It's an interesting situation and everyone has given good advice thus far. In my experience, the high FCP can be indicative of inflammation from IBD, but I've had some results that were inaccurate with FCP. At the same time, the high result has to indicate something, and if not a bug, then what? I do not know what results with IBS typically are, but I do know that scopes, while usually quite accurate, can miss things. If you're doing well when you get the scope, or if the area of concern is small, it can be missed . I've had moderate symptoms, and have a scope show almost nothing. The only reason my doctor found the small area of inflammation is because she was extremely diligent. At the same time, my symptoms were much more clear, I had blood in my stool. So, your symptoms are somewhat vague, looseness and high FCP? Anything else? It comes and goes? You've tried a handful of IBD meds with no result? Stool tests show nothing? Scope found nothing on multiple occasions? The high FCP makes me think IBD, but the lack of evidence in the scope is strange. What meds have you tried? I am not familiar with the ones you mentioned. Have you tried pentasa or lialda?
Co-moderator: Ulcerative Colitis
Currently: no meds. 6/15 Step One J-pouch Surgery Complete! 9/15 Step Two Complete! 11/15 Step 3 Complete!

Give a man a fish and he will eat for a day; teach a man to fish and he will eat for a lifetime; give a man religion and he will die praying for a fish.

Orchidfox
New Member


Date Joined May 2017
Total Posts : 16
   Posted 9/5/2017 10:53 PM (GMT -6)   
My symptomps other than loose stools, it comes and goes, also have occasional burning and dull pain below right ribs, all the rumblings (like annoying gas or foamy things take a stroll inside your gut back and forth-doctor said its my abnormal guts movement) also start somewhere around area on the right below the ribs/diafragm, it's so loud and I can really feel the movement passing from right to left then I will burst-sorry- explosive gas from below. At worse it can happen from evening till morning. At some point it's super gassy and when I woke up it also came out from- sorry- vagina,the gas. And it made me more terrified cause Crohn is like this with it can forms fistulas. But not everytime, this year that happened once back in march. And my doctor made no comment on this. 3 years seeing me I think he really fed up with me not responding to any medicine and the symptomps seems add one after another in those 3 years.

Other than that occasional mild nausea. I have prescribed salofalk, mebeverine, proton pump inhibitors like lansoprazole to rabeprazole to pantoprazole, various probiotics, anti diarrheal like activevated charcoal or attapulgite (these help when the D starts), supplement of vit D and B12, librax, even xanax and some antidepressant with scary names and I didn't take it since I'm too scared. All made no change.

It's a kind of sickness in which you walk to far, it relapse, you work for a couple hour than the usual hour, it relapse, you drive car pass 1 hr,it relapse. You have eat on diet, still relapse. Like every single thing is triggering it for me. I have no life anymore.

Post Edited (Orchidfox) : 9/5/2017 10:01:44 PM (GMT-6)

New Topic Post Reply Printable Version
Forum Information
Currently it is Wednesday, September 19, 2018 7:40 AM (GMT -6)
There are a total of 3,004,563 posts in 329,154 threads.
View Active Threads


Who's Online
This forum has 161744 registered members. Please welcome our newest member, rju65654.
309 Guest(s), 7 Registered Member(s) are currently online.  Details
Naples, Sarge 83, boris_badenof, Dimitri71, oceanfisher58, getting by, RobLee