Can anyone help if the doctors can't, i don't know what's wrong and i'm scared. Do any of the symptoms below seem familiar to anyone?
I guess I have to start from the beginning for it to make sense. If anyone reads this and can offer advice or opinions i would be very very grateful. I feel very alone with my worries and symptoms. Outwardly i am a confident and 'normal' 21 year old at university, and all my friends at uni are great but have no experience of being ill or of illness and i don't feel it's fair to burden them with my fears. I also feel to embarrassed to talk to them about it.
I'm a uni student who has had IBS since i was 17 and then 2 summers ago i started bleeding ansd the cramps and dairrahoa became much worse. I had an endoscopy and colonoscopy in the summer of 2004 and they tested fro food alergies: none and IBD. They found mild inflammation and it wasn't severe enough to be diagnosed as anything other than 'just' IBS, so they packed me off with physillium Husks and told me to eat more vegetables and fibre. (I have always had a great diet and look after myself).
I started bleeding regularily again about 9 months ago on and off with blood on the paper and on the stool but only in it once, there is no cut visible and no piles visible. I have to run to the loo alot and i have regular cramps. They are doing another endoscopy and colonoscopy in 2 weeks and for the last month they have told me to eat gluten which i normally stay away from and it makes my symptoms worse.
My symptoms are cramps, bloating, diarrahoa, bleeding, no weight loss, fatigue, skin tags and occasional constipation.
I'm scared about the tests for different reasons. I just want to know what's going on and i want to be well. I feel trapped in a circle of constant blood tests (done the celiac test twice:negative too) and having to eat wheat for the test and getting ill from it and i see my friends, all my age so full of energy and i'm tired all the time and am thinking about poo! I want to enjoy being young. Please help, if anyone can, in any small way. what can i do to feel well and peaceful again?