I am a newbie on this site...I have been welcomed by the fibromyalgia group (thank you) and would like to meet some of you guys! It is so nice to hear encouraging words, and more, to know that there are others that deal with this...I would like to give history if that would be ok...I am seeking others that have the same problem I do because I believe there is more going on than standard IBS, and I would like to have it confirmed or denied. Maybe all IBS sufferers deal with this, I don't know!
I had a horrible flu. You know, the both end kind. It lasted for several days. On the 4th evening, I tried to eat some crackers. I had slept for 4 days, so I was up late. As I am eating the crackers, my whole stomach is swelling. Not a little. Within 20 minutes (the time it takes for food to hit your stomach) I looked 9 months pregnant. I woke my husband, who freaked when he saw me!!! I was huge!!! He took me to the doctor the next morning and he decided he wanted to run some tests the next week (assuming gall bladder). By Sunday, the swelling was so bad that the stretching caused horrible pain, just like my first pregnancy. I couldn't breathe because it pushed on my diaphram. My husband took me to the emergency room. They admitted me and I stayed for the better part of January. In the end, they had removed my gall bladder and told me I was obese. I gained 33 pounds in that month and maintained less than 500 calories a day. Where did the weight come from???? How did I become obese? No one knew.
They tried several medications throughout the next year and a half, ran more tests than I can count, and sent me to countless doctors. KU told me I had a virus in my intestines and would get over it in 6 months to a year. Lay and bed and rest. Right!! We have 5 children and 4 yorkies (I breed and show my dogs) who in the world can rest for 6 months? Several tests don't come out right, even now, but not enough to be alarming, so I cope, right? I wear maternity clothes because EVERY time I eat or drink anything, I go from a normal flat stomach to a huge maternity stomach! I eat very little because if I do indulge in a normal meal, the diarrhea is so bad, I can't leave the house.
The migraines start. The first came on in 30 seconds flat. My husband was afraid I had an anurysm, so he calls an ambulance. My stomach starts swelling without food or drink that night. They admit me again and I spend two lovely weeks in Hotel Hospital with the same migraine. No meds can get rid of it. My family thought I was brain damaged because I was unintelligable and out of it. They decide to send me to Mayo. They do measurements on my stomach and see that I swell NINE inches in 30 minutes!! I had been subjected to horrible head tests and they were baffled as to why the headache would not subside. My blood pressure was 210/140(related to the pain) so they wanted me to head to Minnesota. By the grace of God, Mayo had an appt. the following Monday (3 days later), so I was released from the hospital, packed my 6 year old up, and my mother-in-law (thank you SOSO much) drove me to Minnesota for the first of two weeks.
Bottom line...infectious onset severe spastic colon. Or, IBS. Fibromyalgia...yes, I knew that. Been living with that for 6 years. Learned alot of valuable information about fibromyalgia and they put me on 120 mg of Cymbalta because their studies showed it helped with the symptoms (an antidepressant), in addition to two migraine meds and meds for stomach spasms. The prognosis is not good. The flu caused this problem, but it would have fixed itself within 6 months if it was going to. It didn't. I know live with this and will forever. Right along with fibromyalgia. Another inexplicable condition. I am 35 years old and live like an old woman in my heart. Doctors can't help, and I believe they just don't know. I have talked to 3 other woman with basically the same stomach experience, and I am curious if there are any others??? I am making it my mission to find others. Alone we are a single case...together we are an epedimic. Anybody out there have this, or know of someone who does? Please pass the word around and I will post the same message in IBS.
I will get off the soap box now and say that I am grateful to have a place to deal with the daily issues of IBS. Thank you for accepting me so graciously! Of course, the story is much more in depth, but I don't want to bore anyone, but if you have this, we can personally compare notes. Thank you for your time!