I sure don't want to steer you wrong. I can only tell you what I would do. What are you hearing about
Labcorp and from whom? If you're hearing it on the Lyme boards, then I would take it with a grain of salt. I think it's a reputable lab. I got my testing done at BBI in Boston....and it was negative. I think alot of people on the Lyme forums have various illnesses......not all Lyme. But they want to put a face on their illness, and they really want to get a positive test result, so they can at least say "I have Lyme and that's why I feel so bad". So I'm wondering if they're badmouthing Labcorp, because they've gotten negative results? Do you understand what I'm saying?
I think it's true that our testing needs to be improved, but at some point, those of us who feel awful have to come to terms that it might NOT be Lyme, but something else with similar symptoms.
But in your case, I think it would be positive. That bullseye rash is pretty indicative. But.....I'm sure there are false negatives out there.
Do you live in a large area, where you could find a really good infectious disease doctor? I wouldn't just pick one out of the phone book.
What would be ideal is if you could find a good one, and then he could tell you where to get tested.
But that would be more money for you.....
It's a real toss-up my4bostons..........I think if you could get the money, I would go to the ID doc, and go from there. Surely he would know more about
Lyme than your present doctor. It's unfortunate that she doesn't know anything about
If you do go to an ID doc......be sure to stress your bullseye rash.
I don't want to put anyone down on the Lyme forums. But I was on one for quite a while a few years ago, and it was almost like a cult. Everybody thought they had lyme, and everyone hated anyone who implied that it might be anything else. They were going to doctors who were known to treat Lyme, and those treatments were potentially harmful to people. They had all sorts of unsubstantiated theories about
Lyme and the spirochete, and how it would hide in the body, and come back out, and all the crazy symptoms it would cause. People were doing very scary things, like giving themselves IV antibiotics while laying underwater in their bathtubs filled with scalding hot water, etc.
Don't get me wrong.........there is alot of lyme disease out there and very few doctors know much about
it, but that's no reason to do foolish things.
So......I would first want to know if you're in a large metropolitan area where you might find a good infectious disease doctor. If not, I guess I would go ahead and get the Lyme test at Labcorp.
I hope I haven't confused you too much. Also, if you do get a negative result back, then I would start looking at some of the other chronic illnesses (like fibromyalgia), and trying to do some of the things for that, that others have found useful in controlling pain, fatigue, etc.
Post Edited (CathyA) : 4/24/2006 2:33:52 PM (GMT-6)