symptoms going haywire

dbab

Veteran Member

Joined : Jan 2004

Posts : 4151

Posted 5/12/2006 7:35 AM (GMT -7)

I'm just posting this pretty much to vent... I hate dumping on you guys all the time but I don't really know where else to "get this out" and you guys are great.

I have been having such a hard time lately... symptoms are going anywhere and everywhere and I don't know what my bathroom schedule will be like day to day. C... D... D... C... D... C... C... I can't keep up with it all. I have been so bad about keeping my symptom journal as everything is just a mess in my life right now. I spend about 12 hours a day on the computer looking for a job and the other 12 in pain not necessarily in that order.

I made an appt with my GI on June 9 because I am just done trying to deal with this as it is. I've had a little blood so I don't even know what that means anymore. For UC, people say see your doc if you have ANY blood and others say see your doc if you have A LOT of blood. I have had blood on and off for the past few months but nothing seems to point to "progression" so who knows. So figured the best thing to do is just make the darn appointment. I'm sure he is going to schedule a colonoscopy cause when I called his office the nurse said the computer shows its about that time but kind of scared to find out if it spread or something. I have been really bad about keeping up with my doctor just trying to fool myself that nothing is wrong. Don't follow my example. Bad bad Des!!

I need a vacation from reality!!!!!

_{Hugs, Des}

_{Co-Moderator ~ IBS Forum}

_{Dx: IBS 1989, Diverticulosis 2004, UC 2005, Sjogren's 2006}

_{Meds: Sulfazine EC 1000mg, Mesalamine Enemas, Chlorzoxazone 500mg, Naprosyn 500mg, Symax SL .125mg, Protonix 40mg, Xanax XR 2mg, Miralax 17g, Supplements}

^{Please help Healing Well continue to help others by donating https://www.healingwell.com/donate}

Keriamon

Veteran Member

Joined : Jun 2005

Posts : 2976

Posted 5/12/2006 7:58 AM (GMT -7)

Can't you bleed with diverticulitis too? I was thinking that you could get those little diverticuli or whatever damaged or infected depending on what you eat. My stepfather has it, but I don't know it he's bled before. I know things with seeds really do him in; they get in that little pocket and get stuck and hurt. Definitely good to go to your doctor and make sure that everything in there is still okay and that a little blood is just par for the course. With your pooping schedule like that, it may be you've just got some serious hemmroids.

I'm sure you're fine--or at least not really any worse, overall. I mean, when you've got one of everything already, how can you have more?! Maybe your doctor will have some idea about how to balance you out; new meds are coming out all of the time.

Good luck with your appointment and I hope you get to feeling better before then!

dbab

Veteran Member

Joined : Jan 2004

Posts : 4151

Posted 5/12/2006 11:07 AM (GMT -7)

Thanks Keri

Yes you can bleed with diverticulosis but its more of a gush of blood usually from a blood vessel. I have had that and it can be quite scary. This bleeding is more like mucusy blood and sometimes covering my stool. I don't think its from hemmies because its not as bright as hemmie blood, its more of a darker red color (its still red so I know its not been digested). Like you said, I really hope its just par for the course.

_{Hugs, Des}

_{Co-Moderator ~ IBS Forum}

_{Dx: IBS 1989, Diverticulosis 2004, UC 2005, Sjogren's 2006}

_{Meds: Sulfazine EC 1000mg, Mesalamine Enemas, Chlorzoxazone 500mg, Naprosyn 500mg, Symax SL .125mg, Protonix 40mg, Xanax XR 2mg, Miralax 17g, Supplements}

^{Please help Healing Well continue to help others by donating https://www.healingwell.com/donate}

ryleigh

Regular Member

Joined : Dec 2005

Posts : 251

Posted 5/12/2006 7:57 PM (GMT -7)

Dbab, Sorry you are having such a hard time... Believe me I understand!!!!! You just want to be normal and have all of this end!!!!!!!!!!!! Sometimes venting on the site does help... You help so many people with all of your great answers I just wanted to give you support... What are you having done in June?? More tests?? I wish we all lived close and could go out... We would all understand if someone had to go to the bathroom!! haha That is my biggest fear being comfortable with people that don't know my issues... Has anyone ever started a support group in there area and had meetings like AA.. I wonder if that would work.. Anyway hope you feel better!!!!

Ryleigh

dbab

Veteran Member

Joined : Jan 2004

Posts : 4151

Posted 5/12/2006 9:34 PM (GMT -7)

Thanks ryleigh

Your response was very sweet. I really wish we could get together too but I know that we are spread out all over the place. I have heard of local IBS support groups however never really dug into finding one. I bet you can google and find something maybe. Can you imagine if we did go out... we'd need to find a place with more than one toilet.

_{Hugs, Des}

_{Co-Moderator ~ IBS Forum}

_{Dx: IBS 1989, Diverticulosis 2004, UC 2005, Sjogren's 2006}

_{Meds: Sulfazine EC 1000mg, Mesalamine Enemas, Chlorzoxazone 500mg, Naprosyn 500mg, Symax SL .125mg, Protonix 40mg, Xanax XR 2mg, Miralax 17g, Supplements}

^{Please help Healing Well continue to help others by donating https://www.healingwell.com/donate}

7Lil

Veteran Member

Joined : Apr 2005

Posts : 3269

Posted 5/12/2006 10:57 PM (GMT -7)

(((DES))) We are ALWAYS here for you!

It's a bummer you are feeling so out of control. I feel for you... We ALL feel for you.
I'm so glad to read that you made an apt with the doc. It would be a bummer to have to be scoped, but hopefully it will give you some answers.
Take care and try to stay as stress free as possible. Easier said than done, I know.

Co-Moderator for the IBS Forum

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dbab

Veteran Member

Joined : Jan 2004

Posts : 4151

Posted 5/12/2006 11:03 PM (GMT -7)

Thanks Lil... yes I was a good girl and made the appt. :) I don't mind the scope at all its just waiting for the news afterwards... oh well, gonna think positive.

I know this crap is getting old LOL. Always been taught to not complain about this and that... well keeping it inside is ten times worse. Thats why I love it here!!!

_{Hugs, Des}

_{Co-Moderator ~ IBS Forum}

_{Dx: IBS 1989, Diverticulosis 2004, UC 2005, Sjogren's 2006}

_{Meds: Sulfazine EC 1000mg, Mesalamine Enemas, Chlorzoxazone 500mg, Naprosyn 500mg, Symax SL .125mg, Protonix 40mg, Xanax XR 2mg, Miralax 17g, Supplements}

^{Please help Healing Well continue to help others by donating https://www.healingwell.com/donate}

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