I don't know if anyone would be willing to do this, but for those of us that are new to this whole IBS thing, I was thinking maybe if one of the veterans who has had this darn disease for a while could walk us through their day.
I was just reading something that made me think. It was on a website about IBS and UC and Crohn's and the woman said it's difficult to judge things like pain tolerance and what have you because you only know how it feels to you. Her example was, if you are in a room with 9 other people and you all have your leg cut off and you are all laying there screaming in pain, you can assume it hurts everybody. But what happens if everyone has their leg cut off and you are the only one laying there screaming, while the others are reading a magazine or sewing or what have you.
I was thinking this group is kind of like that. I can sit here and say my stomach is killing me and it might be, but to someone else it might not be that bad. I just thought it might be a good way to put things in perspective. I know when I was first diagnosed with UC and started having really bad symptoms I thought I was dying. I wish I had known about this group then.
Having your body going haywire is a scary thing, and since I assume most of us are worriers it only makes it that much worse. For people that just have this start happening to them could be scary for them and I thought this might be a good way to give them some perspective.
I understand this is an incredibly personal thing to ask and go through, I just thought it might help. Maybe, I'm way off base and please don't anyone take this the worng way. I was thinking symptoms throughout the day, frequency of BMs, meds you take if any, that kind of thing. I'd do it myself, but without being absolutely sure this is IBS I don't want to put any false information out there...
Diagnosed about five years ago with UC -- wasn't too extensive.
Lost insurance and had a bad flare for a couple of months without any treatment -- couldn't afford them.
Took Prednisone for about two months to go into a remission, with minor flares, that lasted for two years.
While in remission I started on Rowasa enemas and then switched to Asacol.
Back on both Rowasa -- 1 night -- and Asacol 3 pills 3xday